Undiagnosed Children’s Day 2013

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5 Responses

  1. Marissa says:

    I hope your words reach many. Those with children with and without a diagnosis. Those that love those children. Those that invest in the progress and success of those children. I can say that what you write inspires me to take my role in those family’s lives and make it a meaningful one. You inspire so much in so many and on Thankful Thursday, I’m thankful for your voice. Changing perspectives and instilling hope in all who read them.

  2. littlemammasaid says:

    This is the first time I have stopped by and I just have to say what a gorgeous lovely boy Aidan is. Man, those eyes are beautiful. Anyway, lovely to hear all about Aidan and I like the way you have cleverly explained how it’s possible to have some diagnoses but no overall unifying diagnosis as it were.

  3. Kristin says:

    You have such a beautiful blue-eyed boy! I have an 18 month old that we are working with various specialists and soon meeting with geneticists to try to get a diagnosis, but every time we run tests, they come back negative. He has lots of non-specific symptoms like hypotonia, macrocephaly, and chronically elevated and fluctuating liver enzymes. I feel like we are headed down a path of him likely being undiagnosed. I’m so glad to have found this community of people online and I’m enjoying reading your kids’ stories.

  4. Shivaun says:

    Excellent, Heather.

    It’s really time to get you on Good Morning America & the Today show.

    Other people have this struggle & they need to hear good news from you.

    Stay strong,
    Shivaun
    Palm Desert, CA

  1. April 16, 2013

    […] Undiagnosed Children’s Day 2013 (teamaidan.wordpress.com) […]

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