Soooooo…I’ve decided to be a vet now that I’m grown up. No, not really. I’m going to be a travel agent. Wait, that’s not quite it either. I’m actually going to be a Bear Specialist, which is a mix between a travel agent, a writer, and a joy bringer (that’s a new word). This is how it began…
Little Elijah had a pediatric stroke and, realizing no one really knows what that means, urged his mom to raise awareness. Don’t we all think strokes only happen to old people? She dressed up a teddy bear with AFOs (foot braces), a special t-shirt, packed a journal, and sent the bear off to other families. I read their story and immediately went out to buy some bears. This great project continued to stir in my head. I finally contacted them and said, “I’d really love to be a part of this.” You’ll never guess what bear is being birthed next. Really. Never…. an Epilepsy bear. ARE YOU KIDDING ME!? But I went kicking and screaming into seizure world and still am delusional enough to see myself as just a visitor. Perhaps Emma and Evan, the Epilepsy bears, will make it a friendlier place.
I will be keeping track of their travels (ooh, maybe the oversees bears will need a chaperone?), staying in contact with the families who receive them, and updating the blog on their visits. Here’s where I could use some help. I’ve already started
the birthing process creating a story for Evan based on sweet Trevy. Do you know a girl who has Epilepsy, preferably not infantile seizures or seizures that present as startles? I’d love to have a little variety between the two. Would that family being willing to share their story as Emma bear? Please feel free to spread the word if you know someone who needs a bear. There are several other diagnoses available, such as congenital heart defect and cerebral cavernous malformations.
So today I’m thankful for an exciting new opportunity that will help me use my time wisely and be part of disability world in a wonderful new way.