Tagged: Seven Snippets

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Seven Snippets

— 1 — It’s been a busy few weeks on the blog with Purple Day, Sibling-Palooza, and Undiagnosed Children’s Day. I just can’t pass up these educational opportunities as I believe telling our stories makes a difference. Thank-you all for joining us. — 2 — Aidan is still recovering from surgery. His 5 weeks follow up appointment went well. They moved his legs around quite a bit and he only winced a bit. Dr. Hip...

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Wheelchair Diving

  — 1 — True story: I went to the gym this week with a personal trainer. He asked, ‘You’re 40, right?” I was shocked and offended, even though, yes, I’m 40. I was prepared to DENY DENY DENY when I asked him accusingly, “Why do you think I’m 40?” There was no way he could win that one, right? He replied, “I looked at your chart.” Oh, ok. Rational, researched facts for the win....

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Snippets of Siblings

— 1 — So we all know that disability effects the entire family, right? While we as parents do our best to maintain balance in our lives and form healthy habits to manage stress, it can be more difficult to be a sibling of a child with a disability. But it’s certainly not all bad… — 2 — Check out this incredible video of a girl who has a twin sister with Cerebral Palsy. You will...

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Seven Snippets

— 1 — Have you ever had the philosophical conversation about walking and talking and which is more important and which you could live without? Some parents would not change their child’s disability because they believe it is the unique quality that makes them who they are. I definitely have an opinion on that but, it’s complicated, and there is no “right” answer. Robert Rummel-Hudson writes about this question in regards to his daughter and...

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Seven Snippets

— 1 — Aidan got a time out this week at school. I’m pretty excited about it. He was directed to get up to walk to his wheelchair because it was time for recess. Aidan can walk with assistance and his teacher knows the difference between refusal and in-ablilty to take action. I LOVE that he was expected to follow directions and was smart enough to make a stubborn choice. I sort of wanted to...

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Six Word Memoir

— 1 — You’ve heard of the six word memoir, right? Apparently Hemingway was challenged to write a short story in six words. This is what he came up with: For Sale: baby shoes, never worn. It’s so intriguing because you know there’s always a story behind the story, but you can say a lot in six words. Of course there are books now and a blog that’s rather addictive. I came up with a few of...

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Seven Snippets of a Baldwin

— 1 — Here’s the HuffPo article on Stephen Baldwin rushing to the aid of a woman who had a seizure. There are a few things worth pointing out. — 2 — First, as is specifically mentioned in this article about the same event, Baldwin was comfortable responding to this event because he’s been exposed to someone with seizures in his family. This is a great example of how familiarity can breed comfort and knowledge....

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Seven Snippets

— 1 — This was church camp or VBS week for me where I get to jump around and sing and have a ridiculous amount of fun with the kids. It’s my favorite week of the summer because children know how to experience unfiltered joy. — 2 — I also got to talk about critter pee (because camp is best when it’s a little bit gross), rock the sprinkler dance move, and have a near...

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Seven Snippets of an Order Muppet

— 1 — Dahlia Lithwick is a super smart, funny, and fabulous woman (I knew her from her camp counselor days) who writes for Slate magazine…and she’s Canadian to boot.  As a lawyer she mostly writes about, um, well, legal stuff. To feel smart talking about the Supreme  Court at your next cocktail party, you should read anything she writes. But today, you really need to read this piece of Dahlia’s to get my week....

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Seven Snippets about My Week

— 1 — So if you’ve been paying attention to the news, or the blogosphere, or read my post here, you’ll know there’s a big shown down with Apple and a speech app and an AAC device. Maya’s mom Dana has been keeping track of where this story is being told. Go to her blog to find out where the wildfire is spreading, to understand more about AAC, and to sign the change.org petition. —...