Tagged: seizures

6

Super Mom

So we’re counting Aidan’s seizures now because we’ll be trying a new treatment soon and need data to know if it works. The other morning I was in another room and realized I was counting his seizures based on my fabulous intuition, which turned out to be right. I came to the obvious conclusion that I have superpowers. I’m wondering if that’s a transferable job skill I could add to my resume. “No sir, I...

3

Drinking the Kool-Aid

So we went to the major Children’s Hospital for a 75th opinion on Aidan’s questionable seizures. I have to say it was one of the best doctor’s appointments ever, as far as medical information is concerned. He had highlighted other doctors’ notes and read pieces back to me to check for accuracy. Sounds like a waste of time for the un-initiated. Here’s the thing, there are errors in Aidan’s medical records so this was really...

2

Really?!? My Life as a SNL Skit…

So we have good news and, um, well, news that is totally in line with Aidan’s MO. Let’s start there. We had a follow up doctor’s appointment today. Now generally when I take Aidan to the doctor they use a lot of big words to say, “Hmmm…that’s weird. Dunno what to tell you. See you in a year.” I think today was worse. The neurologist and his partner both looked at video of Aidan having...