Tagged: seizures

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Purple Day Fact Three

There are two major groups of seizures; primary generalized and partial. Within those groups there are many different kinds of seizures which are named according to what they do to the brain and body. Aidan has absence seizures which are characterized by staring into space. He also has myoclonic seizures which present as his hands flying out and his legs flexing. Aidan also has complex partials which are very difficult to tell if they are a...

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Purple Day Fact Two

Epilepsy is a neurological disorder. It is NOT contagious. It is NOT a mental illness and it is most certainly NOT any sort of demon possession. This is why it matters to me

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Purple Day Fact One

Approximately 3 million Americans have Epilepsy. That’s more than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson’s COMBINED – yet receives fewer federal dollars per patient than each of these. This is why it matters to me

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Purple Day Fact Four

First Aid procedures have changed over time. When you see someone having a Tonic-Clonic seizure (formerly knows as grand-mal and what is most frequently depicted as a typical seizure) DO NOT put anything in the person’s mouth. They won’t swallow their tongue but they are also not in control of their biting. For the most part, do nothing but time the seizure, call for help if necessary, clear the area of objects the person could...

4

Please Join Us

Please join us again for Purple Day next tuesday, March 26th. Purple is the color for Epilepsy Awareness and next tuesday is the day we get to make some collective noise. Feel free to check out my Epilepsy Information page. One third of the people who have Epilepsy have uncontrolled seizures; Aidan is part of that group. His seizures have changed our lives and stolen a part of him.  I believe that telling our stories...

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No Time to Waste

I bought a watch this week. It’s simple and pretty and it tells time. Time flies. Don’t waste time. Time marches on. Time stands still. There’s no time like the present. I bought a watch this week even though for 40 years I’ve never worn one. Well, there was the brief time in middle school when Swatch watches were super cool and I had a black one. It meant I belonged, that I was Somebody. I...

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Bleeding Words

I wrote words on my walls because words matter, because the walls were coming down, because the words were more than words; they were my bleeding soul. I wrote words on my walls because I knew I would smash them down and somewhere in there I wanted those words to come alive, to be real; I wanted to destroy their truth and not just their letters. I wrote words on my walls because my soul...

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A Mobilized Community

Do you know how many people die from breast cancer in the United States every year? 40,000. That is 40,000 too many. It’s also just a number. It doesn’t tell the story of lives cut short, family and friends left grieving. It doesn’t speak of the three million breast cancer survivors currently living in the United States who have been changed by their battle. There is good news, however, and it deserves reflection. The good...

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1 in 26

1 in 26 people in the United States will develop Epilepsy at some point in their lives. It’s more common than you may realize. Two-thirds of people living with Epilepsy are able to control their seizures and may not be recognized as having a neurological disorder. Check out this video by the Epilepsy Foundation.   Here’s why it matters to me:

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Veterans Day

Let me first take the time to say thank-you to our veterans. I’m grateful for your service and your sacrifice. Next, I’d like to encourage everyone to read this amazing tribute to military wives. Thank-you also to our military families who have made incredible sacrifices as well. It’s still Epilepsy Awareness month, and yes, these two subjects intersect. People with traumatic brain injury (TBI) are at greater risk for developing Epilepsy. Our most recent wars...