Garreth got kicked and pinned in the ribs yesterday. I got smacked in the face, a fairly regular occurance. Liam took it in the leg and Aidan’s finger was bitten until it bled. Family snuggle time in this house has its recreational hazards when seizures are involved. Aidan’s seizures are changing again. He drops his head now frequently when he drives, taking away his greatest skill. He tremors and stares quite a bit making meal...
This is the Big Fat Face of Epilepsy in our house right now: Yes, that’s a tiny bit of beef and broccoli with a slab of butter and a side of whipped cream. It’s nothing but a whole lot of fat and just a few carbs and protein. That’s Aidan’s dinner. He can have no more, no less. And this is four days worth of snacks. They’re hazelnut chocolate cookies, sort of. They took me...
Aidan is turning thirteen this week and he can’t have birthday cake. As I mentioned yesterday, I will be eating cupcakes because I’m having a tiny pity party. But no cake for Aidan because we have to start to starve him, sort of. At this time last year Aidan was in the hospital having hip surgery while our house was under major construction. This was a big deal, to put it lightly. It was a...
If you follow me on FaceBook, which you totally should, you would know that I saw TWO unicorns today. If you define unicorns as beautiful, miraculous creatures that are magical, which Websters most certainly does not, but I do, so there. But let’s back up to my first unicorn sighting several months ago. You will NEVER guess where the unicorn was frolicking. Seriously. I’ll give you a hint…it’s the LAST place you’d think of. Exactly....
November 4, 2013 Epilepsy Awareness Edition First I give to you a great website with lots of scientific articles and clear explanations. Epilepsy.com is worth the read. ******** Next I give you another Mainers blog of her life raising a son with Epilepsy. She’s an incredible writer and spares no punches. You will probably cry. Every November Christy has done an incredible job raising awareness and I’m sure this month will be no different. ********...
November is Epilepsy Awareness month. I don’t want it to be a competition between diseases and who makes the loudest noise and has the sexiest celebrity advocates and gets the most funding. Let’s cure breast cancer. Really. Now. While we’re at it, let’s cure Epilepsy too. This post should be full of helpful information to make this awareness month useful. But I’m tired and don’t have it in me at the moment. Maybe later. Right...
As a reminder from Wednesday’s post, I’m only addressing medical marijuana, not recreational, and specifically as it’s used to treat seizures. I believe that any treatment should be used in consultation with a doctor that you trust. I’m not a doctor, though like many Medical Moms I’ve passed for one. None of this should be taken as medical advice. Lastly, any preconceived notions you have about the pot your friends smoked in high school, get rid of...
Let me get a few things out of the way before we start this conversation. I’m only addressing medical marijuana, not recreational, and specifically as it’s used to treat seizures. I believe that any treatment should be used in consultation with a doctor that you trust. I’m not a doctor, though like many Medical Moms I’ve passed for one. None of this should be taken as medical advice. Lastly, any preconceived notions you have about the pot...
September 23, 2013 Edition Here’s an article from the Huffington Post about students who were prevented from attending school until they could show they weren’t HIV positive. The Americans with Disabilities act prohibits schools from barring students based on HIV status, and it’s not a communicable disease. Looks like there’s still a need for HIV education, which leads me to… ********* Jodie Howerton is the mom of a child who is HIV positive. She set out to...
Dear Epilepsy, I forgot to miss you. You’ve been in our house for over two years now. At first, you were so quiet I didn’t realize you were even there. I had been actively blocking the doctor’s warning that said many kids with neurological impairments will develop Epilepsy. Then there was no denying your presence. So I found my community, other seizure moms who get it, and I may have gone a little crazy. You were...
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