Tagged: purple day

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I Forgot to Miss You

Dear Epilepsy, I forgot to miss you. You’ve been in our house for over two years now. At first, you were so quiet I didn’t realize you were even there. I had been actively blocking the doctor’s warning that said many kids with neurological impairments will develop Epilepsy. Then there was no denying your presence. So I found my community, other seizure moms who get it, and I may have gone a little crazy. You were...

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Purple Day Fact Three

There are two major groups of seizures; primary generalized and partial. Within those groups there are many different kinds of seizures which are named according to what they do to the brain and body. Aidan has absence seizures which are characterized by staring into space. He also has myoclonic seizures which present as his hands flying out and his legs flexing. Aidan also has complex partials which are very difficult to tell if they are a...

4

Purple Day Fact Two

Epilepsy is a neurological disorder. It is NOT contagious. It is NOT a mental illness and it is most certainly NOT any sort of demon possession. This is why it matters to me

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Purple Day Fact One

Approximately 3 million Americans have Epilepsy. That’s more than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson’s COMBINED – yet receives fewer federal dollars per patient than each of these. This is why it matters to me

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Purple Day Fact Four

First Aid procedures have changed over time. When you see someone having a Tonic-Clonic seizure (formerly knows as grand-mal and what is most frequently depicted as a typical seizure) DO NOT put anything in the person’s mouth. They won’t swallow their tongue but they are also not in control of their biting. For the most part, do nothing but time the seizure, call for help if necessary, clear the area of objects the person could...

4

Please Join Us

Please join us again for Purple Day next tuesday, March 26th. Purple is the color for Epilepsy Awareness and next tuesday is the day we get to make some collective noise. Feel free to check out my Epilepsy Information page. One third of the people who have Epilepsy have uncontrolled seizures; Aidan is part of that group. His seizures have changed our lives and stolen a part of him.  I believe that telling our stories...