Tagged: parenting

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Thankful Thursday

Today I’m thankful for the normal in my life. Many of our activities are geared around what is good for Aidan or what he can do. Then we make sure we balance that with fun times with Liam. It’s a little harder to engage everyone for a good time. Basketball is a favorite family activity. Liam is not afraid to take the ball from Aidan. Aidan loves to zoom around fast, and Garreth is actually...

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When Molehills Really are Mountains

THIS is the water bottle that Aidan drinks out of. Last year he learned to drink from a straw, which was much more age appropriate than a sippy cup. Recently, he learned to drink specifically from THIS water bottle. It’s bigger than a sippy cup so he gets more liquid and the size and straw type are just right. (I love you Thermos! Any Thermos execs out there want to send us a big ole’...

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ipad Strikes Again

Aidan came home from school with a new button on his ipad -“I have a warrant for your arrest.” I’m wondering if in these hard economic times the police department has decided to collaborate with the education department. It’s apparently never too early for our youth to get some life skills and job training. So, the next time a police officer detains you, ask yourself these questions, “Is he 10, using a wheelchair, and trying...

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Funny Story

So I have Aidan’s ipad programmed to say “I’d like to choose a drink please.” When he touches that button it switches to a page where he can choose a drink. A few weeks ago I was helping him show off this skill to his grandparents. When he touched the button it said, “Give me a drink now. No questions.” Hmmmm….I’d say big brother had been messing with the ipad. I left it that way...

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Drinking the Kool-Aid

So we went to the major Children’s Hospital for a 75th opinion on Aidan’s questionable seizures. I have to say it was one of the best doctor’s appointments ever, as far as medical information is concerned. He had highlighted other doctors’ notes and read pieces back to me to check for accuracy. Sounds like a waste of time for the un-initiated. Here’s the thing, there are errors in Aidan’s medical records so this was really...

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Please watch, laugh, cry, and have a great summer!

I should start with a big shout out to the special education professionals who read my blog: Thank-you Sharona, Christie, Judy, Noel, Marissa, Sue for your commitment and compassion.  I’ve always been frustrated by the us vs. them mentality in special education, the one that suggests that teachers really desire to do less than their best and that parents really exist to milk the system.  I’m a glass half full person and really want to...

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Really?!? My Life as a SNL Skit…

So we have good news and, um, well, news that is totally in line with Aidan’s MO. Let’s start there. We had a follow up doctor’s appointment today. Now generally when I take Aidan to the doctor they use a lot of big words to say, “Hmmm…that’s weird. Dunno what to tell you. See you in a year.” I think today was worse. The neurologist and his partner both looked at video of Aidan having...

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Lippy kisses

Long, long ago in a galaxy far far away, my little boys would give me lippy kisses in abundance. Now you can hear Liam and sometimes my husband whispering to Aidan, “Please, take it for the team dude.” When Liam was maybe three years old, he spent the day at a camp with other kids, separate from mom and dad. They had a bathroom break. Wanting to encourage good hand-washing habits, his counselor prompted, “Now...

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Fooze Ball

This is just sad. I’m a pretty competitive person and I played fooze ball today with my boys. Both of them against me. Aidan was on defense. Now, he has motor planning issues. While he can hold the bar to control the players, it’s really without purpose or control. I want to say I let them win. I could say they won because there were two of them. The truth is, I just plain stink....

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Sibling Rivalry

Here’s my dirty little secret……there is no sibling rivalry in my house. Think about it. Sibling rivalry is generally caused by saying something or doing something. Aidan can’t speak and can’t get anywhere on his own. That generally super stinks, but today I’m thinking about all the things I’m lucky enough to miss out on. Stuff like this: brothers who fart on each other an older sister who wraps her younger sister in toilet paper...