There have been several articles written on what we, the parents of kids with special needs, wish you, the others, knew about our lives. These two articles cover a lot of ground that I firmly agree with. I want to add my own two cents, and I’m only speaking for myself. Please don’t say, “I don’t know how you do it” or “I just couldn’t do what you do.” Here’s the truth, you would rise...
— 1 — So sometimes being a blogger really means you’re just an obsessive blog reader. That’s what I’ve been doing this week. Partially because I was unmotivated during this rainy week and partially because the blogosphere was alive with passionate posts about parenting. — 2 — This piece sums up how I feel about parenting in light of all the hullabaloo out there in the past weeks – do what is right for your...
We’ve all been reading a lot about parenting this week, right? I’ve decided to chime in. There seems to be a dichotomy between what’s presented in the media and what flesh and bone, heart and soul women are communicating to each other. In the media, we look like we’re tearing each other down (are you parenting in this particular way because if you’re not than you suck) while I believe women tend to support each...
(note: This photo was taken after our family photo was an epic fail so we decided to embarrass our kids. Feel free to say, “eeww, groooooss.”) I had a conversation with a friend recently regarding marriage. While I acknowledged the occasional desire to head for the hills (beach, really, in Greece, specifically) he said, “Yes, but you have a lot of stress in your marriage.” He was referring to raising Aidan. While this is true,...
At some point in my life I took the tedious steps to being a responsible parent, well, some of them anyway. First we got life insurance. Whenever I point out that my husband is worth way more dead than alive, I’m quick to mention that all of that money would be necessary to deal with the depths of my despair because I love him so dearly. I’d need all of my girlfriends with me for...
Meet Kelly, another guest writer in my Faces of Epilepsy series. When I first asked Kelly to share her story she said, “I don’t think it’s much of a story.” It is. Everyone’s journey looks different, which I why I’ve done this series. The more Faces of Epilepsy we see and the more we talk about the different ways Epilepsy presents itself, the more aware we are and the quicker the next person may be...
Aidan has been followed by a wonderful geneticist. Through all of Aidan’s (and our) genetic testing we’ve discovered that Aidan and I have extra genetic material on our third chromosome. I’m pretty sure that’s where the good looks and big brains are stored. We see the geneticist every year and she frequently has new tests to run. We’ve gotten accustomed to Aidan’s lack of a diagnosis. We set goals for him; he works hard; we’ve settled...
I’m not done introducing you to my friends with Epilepsy, nor do I think I’ll ever be done educating others on that topic. However, we’re going to switch gears for a moment to the upcoming Blue Day or Undiagnosed Children’s Day on April 13th. If you recall, we did this last year and it’s a totally made up day (by me) that we can recognize again. I had a wonderful pregnancy with Aidan and an...
Remember Miles who got an accessible van last year? His mom Michelle tells us their story in this next installment of Faces of Epilepsy. Listen closely to how this story is driven by Epilepsy but has so many other things going on. I appreciate her raw honesty. My seven-year-old son Miles has epilepsy. Unfortunately he has a lot of health conditions and challenges which have resulted in his being profoundly disabled and medically fragile. But...
Epilepsy has made me ANGRY enough to want to scream and pull my hair out…. After all that Aidan has already been through, he has ONE MORE THING to battle? Really?? It all made me sorta CRAZY…….. No, really crazy, as in tall lady buying 4 inch black heeled boots she can’t walk in kinda crazy… And this is after a relatively short journey into Epilepsy world. It took us two years to get that...
Got a synaptic story you'd love to tell? I'd love to help you share it right here on FamilySynapse.com as a guest writer.
