Tagged: parenting

29

Letter To The Others

You’ve seen me at the playground with my son and passed us in the mall.  He is the one in the wheelchair, the one who drools, and vocalizes with insistence instead of words. I owe you an apology, not for who my son is, but for what I’ve done to you. I tend to be pretty zealous about the words you choose, and in doing so probably shut you down. You see, I really don’t...

14

Biggest Cop Out Ever

This post is the biggest cop out post ever and is brought to you by a severe case of writer’s block. And, frankly, dear readers, it’s time you pulled your weight around here. Aidan and I are headed to Yale in a few weeks. Yes, we really are all that.  We’ll be guest lecturing to a class of pediatric nursing students to give our two cents about living in Disability World. So, if you had...

24

Six Word Memoir

— 1 — You’ve heard of the six word memoir, right? Apparently Hemingway was challenged to write a short story in six words. This is what he came up with: For Sale: baby shoes, never worn. It’s so intriguing because you know there’s always a story behind the story, but you can say a lot in six words. Of course there are books now and a blog that’s rather addictive. I came up with a few of...

14

Whispered Words

My baby lies in his isolette with a little oxygen tube and feeding tube coming out of his nose. He sleeps, not the sleep of a newborn, but the sleep of a weakened life that doesn’t have the energy even to eat. Three months we watch, worry, and wait. Awake, my sweet boy. Come join your family. And he does. Aidan comes home from the hospital where we hold him, play with him, and learn...

4

The Silent Beast

When Aidan was born I was told that kids with neurological issues are at higher risk for seizures. I was too busy working for every ounce of progress he made to give that a second thought. Then the Beast struck, silently at first…. Please join me today over at These Broken Vases to read more about Aidan’s seizures. If you’re new here read about our life without a diagnosis, and how it effects my marriage, and what...

5

Be The Change

So Gandi tells us to “Be the change that you wish to see in the world.” Ok, I can get on board with that, but what if you’re busy or exhausted or discouraged? What if you’re already making change because in the regular course of raising a child with a disability you’ve made noise in the education system, you’ve argued considerably with insurance, and you’ve taken the time to educate medical professionals? What if, among other...

6

Seven Snippets of an Order Muppet

— 1 — Dahlia Lithwick is a super smart, funny, and fabulous woman (I knew her from her camp counselor days) who writes for Slate magazine…and she’s Canadian to boot.  As a lawyer she mostly writes about, um, well, legal stuff. To feel smart talking about the Supreme  Court at your next cocktail party, you should read anything she writes. But today, you really need to read this piece of Dahlia’s to get my week....

8

Janea

Meet Janea. She blogs here about raising twins, one of whom has CP. To see her son Kader using a very cool walker, check out this post. I’m happy to have Janea here today to share her thoughts on community. I felt a mixture of emotions when I received Heather’s invitation to guest post about “building community” on her blog.  However, the invitation is a way of building community and it is hard to say...

6

A Little Church and State Mix Up

Meet Talley, LICSW. She’s a shaker and a mover. Talley is a friend from my church who also married into a most wonderful family that I know from my younger days. Talley gets things done. I am always humored by the little snippets that pop up every once in a while about the separation of “Church” and “State”.  I am particularly fond of the one that goes a little something like this: “prayer will always...

0

Community

Complaining with the baseball moms that the game is so boring, sitting next to the soccer moms wrapped in blankets because it’s too cold, chatting about the homework our kids have this year and the teachers they may have next year…here I find community. Walking boldly into the Tavern with my heart heavy from missing my best friend, searching for new friends. These are women I’ve heard to be amazing, though I don’t really know...