Tagged: inclusion

5

In His Shoes

So I took Aidan’s power chair out for a test drive by myself. He was at school with a different chair and I wanted to see what life would be like from his perspective. I went to two big box stores, made purchases at both, and spoke to people at both. I recognize that this is a very limited social experiment but here’s what I learned. Let’s start with this – I’m waaaay too UNskilled...

5

Decision Wheelchair

We’ve finally made a decision about Aidan’s wheelchair. Aidan tested both a manual and power chair and we gathered lots of info. We listed pros and cons and got all sorts of advice. Then, together at the end of the day, Garreth and I had a heart to heart. These conversations aren’t always easy. There’s the logical side and the emotional side. Garreth put it right out there that he didn’t like to picture his...

2

Apps for Autism

Please take a few minutes to watch the segment that 60 Minutes aired this week on Apps for Autism. Here’s the best nugget you can walk away with: Just because someone can’t speak doesn’t mean they have nothing to say. There should be a collective duh on that one but is that how we act? Do we find ourselves using baby talk with people of all ages who are non-verbal? Do we assume they only...

3

One Huge Step

I was out shopping in the historic town of Portsmouth, NH recently when I saw a most bizarre sign. It was simply a handicapped accessible sign, but it was in front of a jewelry store that had one huge step out front. I wasn’t with Aidan and I hadn’t intended to go into the store but I just couldn’t walk away. Truth be told, I was a bit defensive and ready to educated them about...

1

Wonderful Weekend

This past weekend we attended a family weekend at a camp for kids with special powers. It was amazing, wonderful, and a great escape from reality for just a little while. It’s always great to be with other parents who “get it.” There’s an instant camaraderie and so much comfort in knowing we’re not alone. We had a chance to do fun camp things: and ridiculous camp things: (That’s an Oreo stuck on his forehead...

2

Thankful Thursday

Today I’m thankful for opinions, well, maybe just Aidan’s opinion. I’ve been asking him each morning to choose a shirt to wear. I hold two up for him and he’ll reach for one. This was the third day he reached for the shirt on the left. So, I switched sides and asked again, “Do you really want to wear the blue shirt?” I swear I got a look. “Really, Mom?” He chose the blue shirt...

1

Independence Day

Aidan’s getting some wheels this year. (Wait, haven’t we already done that?) Aidan is a walking boy and that is a huge victory. The thing is, he walks short distances and requires some assistance. Right now we use a gait belt and hold one of his hands to help him get around. He can turn his body to tell you where to go (Remind me later to tell you about the stairs fiasco). So far...

4

Funny Story

So I have Aidan’s ipad programmed to say “I’d like to choose a drink please.” When he touches that button it switches to a page where he can choose a drink. A few weeks ago I was helping him show off this skill to his grandparents. When he touched the button it said, “Give me a drink now. No questions.” Hmmmm….I’d say big brother had been messing with the ipad. I left it that way...

2

Please watch, laugh, cry, and have a great summer!

I should start with a big shout out to the special education professionals who read my blog: Thank-you Sharona, Christie, Judy, Noel, Marissa, Sue for your commitment and compassion.  I’ve always been frustrated by the us vs. them mentality in special education, the one that suggests that teachers really desire to do less than their best and that parents really exist to milk the system.  I’m a glass half full person and really want to...

5

Cousins

Last summer three of the four grandchildren were having breakfast at Pop’s house when Owen spoke up and asked where Aidan was. We said he was sleeping. The kids disappeared and we heard lots of counting, ignoring it as it was before coffee. Then in come the three grandchildren carrying Aidan, one at his head and one on each leg. After my initial, thankfully silent nervous reaction, I just stayed very close as they carried...