Tagged: inclusion

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Community

Complaining with the baseball moms that the game is so boring, sitting next to the soccer moms wrapped in blankets because it’s too cold, chatting about the homework our kids have this year and the teachers they may have next year…here I find community. Walking boldly into the Tavern with my heart heavy from missing my best friend, searching for new friends. These are women I’ve heard to be amazing, though I don’t really know...

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Belonging

We all want to belong, to have friends, to be part of community. It’s in these relationships that we find the fullness of life, not how much we know or what we’ve accomplished, but who we’ve journeyed with. This blog was birthed out of the desire to share my story and in doing so appreciate the journey. But I also fully believe that sharing our stories builds connections, makes someone feel less alone, creates community....

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Snippets of Undiagnosis

— 1 — So next year on Undiagnosed Children’s Day, the day I totally made up, I will have figured out how to do a blog link up so we can hear from everyone. I’ll also remember that it happens on April 13th, so I can put the word out properly. Until then, check out these other stories…. — 2 — One Bite at a Time — 3 — Metamorphosis to Health — 4 —...

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My Former Life

I had a great life before kids. Wait, let me rephrase that….my life was different before kids and it was great in a different way. I worked in the field of education in varying capacities and loved it. I love kids, and being creative, and watching young minds blossom. Right before I had Liam, I worked as a teacher’s aide in a third grade classroom with one student in particular. I was given free reign...

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Meet Hillary

Here is another guest post in my Faces of Epilepsy series.  A quick reminder as to how we can jump from Undiagnosed Children’s Day back to a series on Epilepsy – Aidan was born with an undiagnosed disability; last year he was diagnosed with Epilepsy; this is only a piece of the puzzle of Aidan as opposed to a complete descriptor of what is going on with him neurologically. Now onto Hillary. My sister was...

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Maya’s Undiagnosed Life

I love reading Uncommon Sense and so much of Dana’s writing I not only enjoy but can relate to. Her daughter Maya has an undiagnosed disability. Here she speaks about simply relating to other parents: At times I’ve wished for something with a name. At least “Down syndrome” would be a label that people could understand. It’s hard to go to music class, or the pool, or anywhere where we often see the same groups...

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Undiagnosed Children’s Day

I’m not done introducing you to my friends with Epilepsy, nor do I think I’ll ever be done educating others on that topic. However, we’re going to switch gears for a moment to the upcoming Blue Day or Undiagnosed Children’s Day on April 13th. If you recall, we did this last year and it’s a totally made up day (by me) that we can recognize again. I had a wonderful pregnancy with Aidan and an...

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Meet Liam

With total bias, I bring you my favorite guest writer in the series, “Faces of Epilepsy.” As we know, when one person is diagnosed with Epilepsy, their entire family is affected in some way. Liam is my oldest son and here he gives words to what it’s like living with a sibling with a disability. In the interest of full disclosure, I gave him free reign to say what he wanted about us but edited...

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Why a Wheelchair?

Aidan’s wheelchair is on it’s way from wherever wheelchairs are born, I guess a wheelchair stork. We’re very excited. It was at first denied by insurance but with a little encouragement (not the mob kind, I promise) they began to see things our way. The only tricky part is that everything in their denial is slightly true, or truthy, or based on truth….whatever. They don’t want him to have the power chair because it’s not...

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Books and More Books

So check these out before you finish your Christmas shopping. Someone will want these. These books are all basically elementary school aged books featuring kids with special needs, read and enjoyed by both Liam and me.   Firegirl by Tony Abbott – This is a thoughtful, if not emotionally difficult story to read.  It’s about a girl with severe burns on her body.  Naturally it addresses issues such as being ostracized, a falling apart marriage, and...