Tagged: health

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Say Whaaat?

Are you ready to learn some big words and get really confused smarter? I told you that seizures can manifest themselves in many ways. What they look like and where on the brain they start defines them more specifically. This is important because if you think you know what a seizure looks like, you may only be familiar with one kind of seizure. Let’s break down what may happen during a seizure. Sometimes people with...

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Meet Dakota

This is the first guest post in the series “Faces of Epilepsy.” It’s written by Shannon, mother of two beautiful children, one of whom has Epilepsy. Here is her story:  I have been exposed to seizures for some time now. One of my close friends was diagnosed with epilepsy when we were in middle school, and although I had never really seen one of her seizures, I do know how they took a toll on her body....

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So What Is Epilepsy?

When a person has two or more seizures not provoked by a specific event (trauma,infection, chemical change) s/he is considered to have Epilepsy. You can have a seizure but not have Epilepsy, but having Epilepsy means you’re having seizures. Stay with me. When your baby is sick, your doctor tells you what temperature she can have before you should bring her to the ED. If it gets super high, she’s at risk for a febrile...

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Decision Making

Every good team has a method of making decisions, right? I can’t say that Garreth and I ever sat down to hammer out how we make decisions, but we have a method, none the less. We’re actually a great team so we basically talk something out until we’re ready to move forward in the same direction. While I’m mostly responsible for Aidan’s medical and educational life, I talk through all the angles with Garreth. That...

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In the Beginning – Part Fourteen

Update Week 12 by me: We had a great weekend at the hospital last weekend as a family—me and Garreth and his mom and Liam. We were finally able to take Aidan off his monitors, just walk him around a bit and sit in the waiting room which is full of natural light. Liam even asked to snuggle Aidan. He did a great job holding him and kissing him. This, of course, was a great...

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In the Beginning – Part Thirteen

Week 10 Update by Becca As of today Aidan is still off Oxygen. Way to go kiddo. He was started on Pedialyte through his G-tube yesterday and yummy formula today. It is still the constant feed and they will work up to the bolus feed in a few days. H+G are going to the hospital tomorrow to begin their training and to discuss discharge planning. Aidan could be home by the weekend. Anne, Garreth’s mum,...

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In the Beginning – Part Twelve

In case there was any doubt, I enjoy writing, not techno-geeking and I have no patience when the computer doesn’t do what I ask. Hey BlogMaster Uncle Bill, wanna get on that? Everyone else, aren’t Aidan’s cutie cheeks worth all that white space? [Done and done. Love–Uncle Blogmaster Bill]   Update Week 8 by Me: Hello Friends! Before Aidan was born I was super organized and had my announcements addressed and thank-you cards stamped. I’ve...

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In the Beginning – Part Eleven

Update Week 8 by Becca Good evening everyone. Heather spent the weekend with Liam and Joshy (brother) at home while Garreth had a little father-son time in Boston. Joshy is moving to California in two weeks and Heather wanted to get some time in with him before he leaves. It was a great weekend. As for Aidan, he had a quiet weekend with his daddy. The plan as of last thursday was for one more...

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In the Beginning – Part Five

There was a lot going on behind the scenes that I found out much later. My aunt, who has had plenty of experience in the medical world as a patient and parent, sent my sister this email with some wise advise: Heather and Garreth must be perceived as strong, capable decision makers at all times. Every single time anything is discussed with them about Aidan, they must ask about all possibilities associated with saying yes...

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In the Beginning – Part Four

Update Week 4 from Becca Aidan was supposed to have surgery today to insert a G-tube and tie up a bit of the top of his stomach to decrease the reflux. This didn’t happen. Last night the docs took out the NG tube and hooked him up to an IV in preparation for the surgery. His O2 saturation levels dropped 30 times (this means his breathing wasn’t stable enough but we had become so used...