Tagged: health

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Ketogenic Diet

So it’s been a tough few days with Aidan’s seizures. He had some doozies that resulted in him hitting his head pretty hard. We’ve also noticed a few variations of his typical seizures. We’ve tried meds in the past that haven’t worked. We also tried the Modified Atkins Diet. It’s based on the Ketogenic Diet and is a medical treatment. While both of these diets have been shown to reduce or control seizures, no one...

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The Other Side of the Boob

We’ve all been reading a lot about parenting this week, right? I’ve decided to chime in. There seems to be a dichotomy between what’s presented in the media and what flesh and bone, heart and soul women are communicating to each other. In the media, we look like we’re tearing each other down (are you parenting in this particular way because if you’re not than you suck) while I believe women tend to support each...

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Undiagnosed Children’s Day

I’m not done introducing you to my friends with Epilepsy, nor do I think I’ll ever be done educating others on that topic. However, we’re going to switch gears for a moment to the upcoming Blue Day or Undiagnosed Children’s Day on April 13th. If you recall, we did this last year and it’s a totally made up day (by me) that we can recognize again. I had a wonderful pregnancy with Aidan and an...

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Meet Miles

Remember Miles who got an accessible van last year? His mom Michelle tells us their story in this next installment of Faces of Epilepsy. Listen closely to how this story is driven by Epilepsy but has so many other things going on. I  appreciate her raw honesty. My seven-year-old son Miles has epilepsy. Unfortunately he has a lot of health conditions and challenges which have resulted in his being profoundly disabled and medically fragile. But...

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Meet Stephen

Here is another post in the series Faces of Epilepsy. Martha tells the story of her brother Stephen and the complexities and fullness of his life. My brother, Stephen Yocum, had epilepsy as long as I can remember.  Stephen was 3 ½ years older than me, yet the difference in years never felt that far (partly because he was only a year ahead in school).  For Stephen, epilepsy was only one of many of his...

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Meet Trevor – Part 2

continued from yesterday… We did go on to have several months of seizure freedom.  During those months Trevor continued to make developmental progress in spite of his abnormal EEG.  Which remained intermittently spikey over the left side.  I never had a peace settle over me that our journey was over.  I always had this hunted feeling.  Like we were being stalked by the Seizure Monster.  But our neurologists insisted he was on a positive path...

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Meet Trevor – Part 1

Continuing with the Faces of Epilepsy series, I’d like to introduce you to my friend Danielle. Her son Trevor has Infantile Spasms, a life threatening form of Epilepsy. They, together with her husband Jonathan and older children Bristel and Toby, have been on quite a journey. Listen to her and I guarantee you will laugh, cry, and be amazed… I should establish up front that I have tendency to take the scenic route.  If you’re...

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I’d Like a Cocktail Please

Sometimes Epilepsy is treatable. Even when it’s not, people go to great lengths to reduce the number of seizures they may have. The goal of any treatment is to achieve the greatest amount of seizure control with minimal side effects. Let’s take a look at the options: AEDs – or Antiepileptic Drugs. There are lots of them. Sometimes conquering seizures requires a drug cocktail. Specific drugs work on specific seizure types. If the first few...

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Meet Tara

This is another guest post in the series, “Faces of Epilepsy.” I’m grateful to Tara for giving us the perspective of being an adult with Epilepsy. She writes here and her posts reflect her hope-filled and joyful attitude. I am a mother of two beautiful children. I am filled with hope, laughter and self-esteem. I am an author, a motivational speaker, a community volunteer and best yet… a full-time mom. I move frequently and travel...

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Meet Jayla

This is another guest post in the series “Faces of Epilepsy.” It was written by 4 year old Jayla’s mother Emily. Pay close attention to all the different kinds of seizures Jayla has had, and all of the different medications she tried to fight them. “Our Roller Coaster Known as Epilepsy” Jayla Claire was born 9/9/07, a week late, weighing 6 lbs 7 oz. She was born still in her amniotic sack, which doctors claimed...