Tagged: health

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Parent’s Perspective

Abby is a pediatric OT and her blog has oodles of information from therapeutic toys to ipad app suggestions. She also hosts a column on parent’s perspectives. I feel pretty strongly that parents benefit from hearing each other’s stories. So, I’m over there today sharing mine. Please check it out and share Abby’s blog especially with the special educators in your life.

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A Mobilized Community

Do you know how many people die from breast cancer in the United States every year? 40,000. That is 40,000 too many. It’s also just a number. It doesn’t tell the story of lives cut short, family and friends left grieving. It doesn’t speak of the three million breast cancer survivors currently living in the United States who have been changed by their battle. There is good news, however, and it deserves reflection. The good...

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By the Numbers

Epilepsy is the fourth most common neurological disorder in the U.S. after migraine, stroke, and Alzheimer’s disease. It is more prevalent than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined. It affects 65 million people worldwide. Despite how common it is, epilepsy is among the least understood of major chronic medical conditions, even though one in three adults knows someone with the disorder.” Taken from: Epilepsy Foundation Why it matters to me:...

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Perfect Love

You’ll have to wait until tomorrow to meet our fourth Super Hero. Please join me today over at SheLoves Magazine as I share how perfect love casts out fear. If you’re new here read about our life without a diagnosis, and how it effects my marriage, and what I want others to know about my life, and enjoy this little bit of sass. I hope you’ll join us for our journey.

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Biggest Cop Out Ever

This post is the biggest cop out post ever and is brought to you by a severe case of writer’s block. And, frankly, dear readers, it’s time you pulled your weight around here. Aidan and I are headed to Yale in a few weeks. Yes, we really are all that.  We’ll be guest lecturing to a class of pediatric nursing students to give our two cents about living in Disability World. So, if you had...

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Children’s Hospital

Blurry but super sexy hospital gown being taped closed to hold “manhood” protector in place for x-rays. Garreth, Aidan, and I spent the day at Boston Children’s Hospital talking to two Orthopedic surgeons who work closely with Aidan’s regular orthopedic doctor. So do you want the good news or bad news first? How about The Not Completely Sucky, The Where the Hell Did That Come From, then The Good News and we’ll top it off...

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Seven Snippets of a Baldwin

— 1 — Here’s the HuffPo article on Stephen Baldwin rushing to the aid of a woman who had a seizure. There are a few things worth pointing out. — 2 — First, as is specifically mentioned in this article about the same event, Baldwin was comfortable responding to this event because he’s been exposed to someone with seizures in his family. This is a great example of how familiarity can breed comfort and knowledge....

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The Silent Beast

When Aidan was born I was told that kids with neurological issues are at higher risk for seizures. I was too busy working for every ounce of progress he made to give that a second thought. Then the Beast struck, silently at first…. Please join me today over at These Broken Vases to read more about Aidan’s seizures. If you’re new here read about our life without a diagnosis, and how it effects my marriage, and what...

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You Are NOT Smarter Than a Fifth Grader

I hate to break it to you, but you are not smarter than a fifth grader. In all fairness, we have the board game and I’m not smarter either. Aidan and I had a genetics appointment a few weeks ago and science has changed since I’ve been in school, heck, it’s changed since Aidan’s was born. I love my geneticist. I get a little science lesson every time I see her. The Human Genome Project is a...

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A Preacher, Doctor, and Your MIL

You’re floating adrift on a life boat with a preacher, doctor, and your mother-in-law. Who gets thrown over board first? (Obviously, not your MIL.) A man breaks into a drug store at night, harming no one and taking only the medicine that will save his son’s life. He gets caught and you’re on the jury. Do you convict him? These questions can be fun to banter about because they’re so philosophical and hypothetical, or at...