Tagged: health

9

Motley Crew

We appeared to be a motley crew at first; two middle aged moms, a young girl, a teenage boy, and an older gentleman. And yet we’d all had our lives changed by some of the same people. Aidan and I were in the waiting room at the orthotist’s office anticipating new foot braces and a lift to eliminate his leg length discrepency. In walked a young girl with a tiny walker and pretty pink glasses....

1

For our nurses

To the ones who rocked my baby when I slept…. To the ones who came into the room when I was crying and offered a kind word, their own story, and a break…. To the ones who asked questions and really listened… To the ones who took the time to explain…. To the ones who took silly, ridiculous pictures of my child wanting to bring a smile to my face… To the ones who were...

2

Seizures Suck – In Case You Forgot

November is Epilepsy Awareness month. I don’t want it to be a competition between diseases and who makes the loudest noise and has the sexiest celebrity advocates and gets the most funding. Let’s cure breast cancer. Really. Now. While we’re at it, let’s cure Epilepsy too. This post should be full of helpful information to make this awareness month useful. But I’m tired and don’t have it in me at the moment. Maybe later. Right...

2

Thankful Thursday

Today I’m thankful it’s just a sprain. Yes, Aidan fell out of his bed and, of course, it could have been so much worse. I’m also frustrated that after weeks of recovering from major orthopedic surgery Aidan is off of his feet again. We had just been adding all sorts of regular walking to his routine. But I’m thankful it will be for a short while. And I’m thankful that Aidan is motivated to walk....

6

Big Day

Today was a much better day for Aidan and a much more involved day for myself. When he saw me this morning, he reached his two hands out in his “I’m ready to walk” sign. So good to see him feeling up for that and so discouraging that we’re weeks away from that kind of movement. For breakfast Aidan drank 8oz of water and 4oz of chocolate milkshake. He continued to stay well hydrated all...

5

End of the Day

Weekends are weird at the hospital. It’s very quiet and nothing really seems to happen. After a decent show of eating yesterday and a little bit of drinking, Aidan has shown no interest today. We spent the day getting him hydrated with IV fluids and bringing his heart rate down. What I’ve learned of his pain so far is that he goes from seemingly comfortable to being very much in pain in a nanosecond, which...

9

On Preparing

We leave for the hospital tonight. Aidan’s hip surgery is scheduled for first thing tomorrow morning. After months of fretting the unknown, and then gaining a better understanding of the procedure and recovery, we are ready. We have confidence that we’re in very good medical hands and have been surrounded by tons of support. We know what we fear. It’s not the actual medical procedure, though I don’t love the idea of cutting into bone...

13

Friends Don’t Let Friends…

Friends don’t let friends go to doctors’ appointments alone. Yesterday was Aidan’s pre-op appointment for his hip surgery in March. Oh my word. It was an all day process. I feel like I went through a bizarre initiation process. We’re not in Kansas anymore, Toto. This is a MAJOR MEDICAL CENTER. Once you leave a small local hospital (where we have received excellent care) and go to a MAJOR MEDICAL CENTER, everything about the experience...

1

No Big Deal

I’m sitting in a hospital waiting room…again. It’s no big deal, really. Just a super fast CT scan of Aidan’s hips to make sure we have all the information we need for his hip surgery in March. The doctor was so kind to attempt the CT scan without anesthesia since it’s only a thirty second scan. Aidan couldn’t do it. He relaxed under the warm blankets and smiled at the radiologist, but he wouldn’t let...

2

Snippets of Siblings

— 1 — So we all know that disability effects the entire family, right? While we as parents do our best to maintain balance in our lives and form healthy habits to manage stress, it can be more difficult to be a sibling of a child with a disability. But it’s certainly not all bad… — 2 — Check out this incredible video¬†of a girl who has a twin sister with Cerebral Palsy. You will...