Tagged: disability

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TIdbits of Dessert for Thought

My fabulous and brilliant Southern friend summed it all up like this: If all you see is Aidan’s wheelchair and ipad, then you don’t get Aidan. If you don’t recognize that he’s in a wheelchair and uses an ipad, then you don’t get Aidan. Having a disability is a very real part of who Aidan is, but it doesn’t completely define him. Wondering how to start a conversation with a person with a disability? Just...

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Thankful Thursday

Today I’m thankful for consonants. We were at Liam’s baseball game this week when I said to Garreth, “Do you hear that?” We both looked at Aidan. He speaks with a very open voweled sound and throws in a few mmms and bbbs here and there. That night he was stringing together a bunch of consonants and vowels and it was very exciting. When Liam got up to bat, I think I heard Aidan yell,...

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Drinking the Kool-Aid

So we went to the major Children’s Hospital for a 75th opinion on Aidan’s questionable seizures. I have to say it was one of the best doctor’s appointments ever, as far as medical information is concerned. He had highlighted other doctors’ notes and read pieces back to me to check for accuracy. Sounds like a waste of time for the un-initiated. Here’s the thing, there are errors in Aidan’s medical records so this was really...

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Thankful Thursday

Today I’m thankful for the numerous doctors, nurses, and administrative staff that have been part of Aidan’s team. We’ve had mostly great experiences and I’ve heard enough horrible stories to know that we’re very lucky. So, Dr. Morrison is not part of Aidan’s medical team but he is part of Team Aidan as a Powerthirster. Ok, so I realize this is a PR clip but I’m going to trust the sincerity of it. Here’s what...

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Second Opinions

Please please please make it easy for us to get a second opinion. It’s not at all an insult to your experience or intelligence. We, as parents, have to believe we’ve done everything we can for our child. You have our medical records and we very well may come back to you for further treatment. When you give me a litany of your experience or worse, make cracks about another doctor’s experience, it’s not professional...

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Medical Records

Oi vey this is a loaded one. There is so much more to doctor’s appointments than just the visit and it can be done well, or not so much.  I always ask for the doctor’s note and I know which offices will send it and which will require a follow up phone call.  I personally think that specialists should automatically send them out. We, as parents or patients, are the ones going to all the...

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Communication at the Doctor’s Office

So I reviewed my Medical Week Posts for this week and they all boiled down to this – let’s all do a better job communicating. There. I said it. You can skip this week if you want to or you can stay tuned for some juicy stories. As fervently as I believe that every general education teacher should take special education classes, I believe every doctor should take communication classes. Do they? I’ve mostly had...

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Thankful Thursday

Today I’m thankful for the Special Olympics. It’s such a wonderful opportunity to celebrate things most of us take for granted, but that Aidan has worked hard for. Who wouldn’t love a big cheer after doing a 100yrd dash? So, today, when you walk over to your printer, or bring your boss her coffee, or whatever, give yourself a hip hip hooray. When everyone starts to give you strange looks, tell them it really is...

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The R Word

Words matter.  You know that, so use them wisely. In honor of Aidan’s upcoming Special Olympics, please take a moment to watch the clip below.  For people who somehow confuse this as a freedom of speech issue, here’s the best thing Tim Shriver says, “You’re allowed to be humiliating, degrading, and hurtful.  I’m allowed to petition you to at least recognize what you say and be aware of the option you have to stop.” The...