Tagged: disability

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Books and More Books

So check these out before you finish your Christmas shopping. Someone will want these. These books are all basically elementary school aged books featuring kids with special needs, read and enjoyed by both Liam and me.   Firegirl by Tony Abbott – This is a thoughtful, if not emotionally difficult story to read.  It’s about a girl with severe burns on her body.  Naturally it addresses issues such as being ostracized, a falling apart marriage, and...

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In His Shoes

So I took Aidan’s power chair out for a test drive by myself. He was at school with a different chair and I wanted to see what life would be like from his perspective. I went to two big box stores, made purchases at both, and spoke to people at both. I recognize that this is a very limited social experiment but here’s what I learned. Let’s start with this – I’m waaaay too UNskilled...

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Thankful Thursday

Soooooo…I’ve decided to be a vet now that I’m grown up. No, not really. I’m going to be a travel agent. Wait, that’s not quite it either. I’m actually going to be a Bear Specialist, which is a mix between a travel agent, a writer, and a joy bringer (that’s a new word). This is how it began… Little Elijah had a pediatric stroke and, realizing no one really knows what that means, urged his...

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Apps for Autism

Please take a few minutes to watch the segment that 60 Minutes aired this week on Apps for Autism. Here’s the best nugget you can walk away with: Just because someone can’t speak doesn’t mean they have nothing to say. There should be a collective duh on that one but is that how we act? Do we find ourselves using baby talk with people of all ages who are non-verbal? Do we assume they only...

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One Huge Step

I was out shopping in the historic town of Portsmouth, NH recently when I saw a most bizarre sign. It was simply a handicapped accessible sign, but it was in front of a jewelry store that had one huge step out front. I wasn’t with Aidan and I hadn’t intended to go into the store but I just couldn’t walk away. Truth be told, I was a bit defensive and ready to educated them about...

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Wonderful Weekend

This past weekend we attended a family weekend at a camp for kids with special powers. It was amazing, wonderful, and a great escape from reality for just a little while. It’s always great to be with other parents who “get it.” There’s an instant camaraderie and so much comfort in knowing we’re not alone. We had a chance to do fun camp things: and ridiculous camp things: (That’s an Oreo stuck on his forehead...

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Little Tidbits

A special shout out to Aidan’s fan club at Yale. Here’s an interesting perspective on some medical issues. First, genetic testing. What a hot button topic laden with emotion. I believe every prospective parent or pregnant woman should have access to accurate information. I also believe they should all have a safe place to voice their concerns. That being said, no one lives life without challenges of some sorts. This blog was birthed out of...

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Thankful Thursday

Today I’m thankful for opinions, well, maybe just Aidan’s opinion. I’ve been asking him each morning to choose a shirt to wear. I hold two up for him and he’ll reach for one. This was the third day he reached for the shirt on the left. So, I switched sides and asked again, “Do you really want to wear the blue shirt?” I swear I got a look. “Really, Mom?” He chose the blue shirt...

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Thankful Thursday

The big question when Aidan does any kind of therapy is, “Will it help him in real life”?  Certainly some therapy is simple repetition to teach his brain what to do and build his strength.  However, we always have an end goal in mind.  This week at physical therapy he reached two big goals in walking – independence and functionality. After several weeks of not having therapy, Aidan usually looses some stamina and needs some...

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Champions

I’ve always seen myself as Aidan’s biggest champion. I have to be the one who believes in him most and fights for him hardest. That’s my job. But what about when I’m not? When Aidan was born I told his physical therapist that I wanted him to walk into kindergarten with whatever support he needed, but definitely walking. I gave her 5 years notice so I think that’s fair. We had no idea what the...