Tagged: disability

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You Are NOT Smarter Than a Fifth Grader

I hate to break it to you, but you are not smarter than a fifth grader. In all fairness, we have the board game and I’m not smarter either. Aidan and I had a genetics appointment a few weeks ago and science has changed since I’ve been in school, heck, it’s changed since Aidan’s was born. I love my geneticist. I get a little science lesson every time I see her. The Human Genome Project is a...

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Buh-Bye PT Services*

If you give a therapist a pittance, they will take their services elsewhere. If they take their services elsewhere, a chid will be left behind. If a child is left behind, they may not do their best. If they don’t do their best, they will need a therapist. If they need a therapist later, you will pay more than a pittance. ************************************************************************* Here’s how the budget madness works: the State decides to cut therapists’ pay...

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Snipping the Budget

— 1 — This week I received a letter from our Department of Health and Human Services. The way we receive respite hours is being completely changed. For those of you who have heard the phrase “balancing the budget on the backs of the elderly and disabled” I thought I’d give you a real life look into how that plays out. — 2 — First, what is respite, you ask? It’s a break. Of course,...

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This Side of the Grass

There have been several articles written on what we, the parents of kids with special needs, wish you, the others, knew about our lives. These two articles cover a lot of ground that I firmly agree with. I want to add my own two cents, and I’m only speaking for myself. Please don’t say, “I don’t know how you do it” or “I just couldn’t do what you do.”  Here’s the truth, you would rise...

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Snippets of Undiagnosis

— 1 — So next year on Undiagnosed Children’s Day, the day I totally made up, I will have figured out how to do a blog link up so we can hear from everyone. I’ll also remember that it happens on April 13th, so I can put the word out properly. Until then, check out these other stories…. — 2 — One Bite at a Time — 3 — Metamorphosis to Health — 4 —...

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Dirty Work

At some point in my life I took the tedious steps to being a responsible parent, well, some of them anyway. First we got life insurance. Whenever I point out that my husband is worth way more dead than alive, I’m quick to mention that all of that money would be necessary to deal with the depths of my despair because I love him so dearly. I’d need all of my girlfriends with me for...

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What Now?

Aidan has been followed by a wonderful geneticist. Through all of Aidan’s (and our) genetic testing we’ve discovered that Aidan and I have extra genetic material on our third chromosome. I’m pretty sure that’s where the good looks and big brains are stored. We see the geneticist every year and she frequently has new tests to run. We’ve gotten accustomed to Aidan’s lack of a diagnosis. We set goals for him; he works hard; we’ve settled...

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Maya’s Undiagnosed Life

I love reading Uncommon Sense and so much of Dana’s writing I not only enjoy but can relate to. Her daughter Maya has an undiagnosed disability. Here she speaks about simply relating to other parents: At times I’ve wished for something with a name. At least “Down syndrome” would be a label that people could understand. It’s hard to go to music class, or the pool, or anywhere where we often see the same groups...

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Snippets of Media

— 1 — So we gave up media entertainment for Lent. No iPods, TV, computer junk. Basically just blogs and email. I immediately felt better, both emotionally and physically. I couldn’t believe how much brain drain was making me tired. Liam and I also agreed that we’re nicer people without the garbage. So, buh-bye Netflix subscription. — 2 — Oh but I sort of drifted into becoming addicted to TED. It’s like reading an entire...

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Seven Snippets

This post is inspired by another great mom of children with special powers. Check out her link below. — 1 — So we received our first insurance denial for Aidan’s powerchair. They seem to believe he should just be pushed around by a caretaker instead of making waves in this world all by himself. I’m secretly hoping we get to go to a hearing and I can turn Aidan’s powerchair into a little steamroller. Aidan’s...