Tagged: disability

14

Biggest Cop Out Ever

This post is the biggest cop out post ever and is brought to you by a severe case of writer’s block. And, frankly, dear readers, it’s time you pulled your weight around here. Aidan and I are headed to Yale in a few weeks. Yes, we really are all that.  We’ll be guest lecturing to a class of pediatric nursing students to give our two cents about living in Disability World. So, if you had...

14

Whispered Words

My baby lies in his isolette with a little oxygen tube and feeding tube coming out of his nose. He sleeps, not the sleep of a newborn, but the sleep of a weakened life that doesn’t have the energy even to eat. Three months we watch, worry, and wait. Awake, my sweet boy. Come join your family. And he does. Aidan comes home from the hospital where we hold him, play with him, and learn...

21

Children’s Hospital

Blurry but super sexy hospital gown being taped closed to hold “manhood” protector in place for x-rays. Garreth, Aidan, and I spent the day at Boston Children’s Hospital talking to two Orthopedic surgeons who work closely with Aidan’s regular orthopedic doctor. So do you want the good news or bad news first? How about The Not Completely Sucky, The Where the Hell Did That Come From, then The Good News and we’ll top it off...

3

Just for a Day

Just for a day I forget about seizures, about IEPs and lurking surgeries. Just for a day, I sit on my couch and shush my children so I can hear who won gold; I get on my feet and cheer for every athlete; I look on in amazement as a guy with one leg hops over a high jump. Just for a day (or so) I was glued to the Paralympics and I was moved....

3

Seven Snippets of Inspiration

— 1 — The Paralympics 2012 has been a game changer for people with disabilities. Oscar Pistorius, the double amputee from South Africa also known as the Blade Runner, put them on the map when he competed in the Olympic Games this summer. The Paralympic Committee worked hard to get commentators who are athletes with disabilities and former Paralympians. This served to educate the public as we watched the Games. And the people came, and...

2

What’s Up with Courtesy Medals?

I’ve been glued to the Paralympics this week and love how this event puts people with disabilities center stage based on their own achievements. There’s just one thing that bugs me; why are guide runners getting medals? After watching Wheelchair Rugby, we’ve all learned never to pet someone who uses a wheelchair, right? Sometimes people with disabilities are accompanied by a caretaker, interpreter, or guide. The rule is, if you want to speak to the...

5

Why I Love Wheelchair Rubgy

They’re kickin’ a** and taking names. Wheelchair rugby is played on a basketball court and is a mix of rugby, basketball,and handball. So why do they call it Murderball? I could tell you that the term was popluarized with the release of the 2005 documentary of the same name which was made to raise funds for the US Paralympic team, or you could watch this: And the US has not lost a World Championship nor...

1

They Did Whaaaat?

Today is World Cerebral Palsy Day. I can’t think of a better way to celebrate than to acknowledge the amazing achievements happening at the London 2012 Paralympics. What incredible things are happening in London right now, you ask? Besides the Irish runner whose mom got to present him with the gold medal, or the blind runner who held up a marriage proposal sign after crossing the finish, or the big Oscar Pistorius upset, or my...

1

Seven Snippets of a Baldwin

— 1 — Here’s the HuffPo article on Stephen Baldwin rushing to the aid of a woman who had a seizure. There are a few things worth pointing out. — 2 — First, as is specifically mentioned in this article about the same event, Baldwin was comfortable responding to this event because he’s been exposed to someone with seizures in his family. This is a great example of how familiarity can breed comfort and knowledge....

1

Be The Change – Part Two

Last week I quoted Gandi and the need to “Be the change.” I then proceeded to map out some of the voices in disability world that have been heard and are making themselves heard now. A friend brought to my attention the fact that the phrase is be the change as opposed to make the change or fight for the change. To be sure, the examples I gave are important and there is a need...