Tagged: disability humor

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Elevator Speech

We’re wearing purple tomorrow for the 50 million people affected by Epilepsy, one third of whom don’t respond to treatment. That’s too dang many. We’re wearing it for the people who have seizures that aren’t medically a big deal, but yeah, they’re a big deal; for the people whose fight against catastrophic Epilepsy is a fight for their very lives; and for the people whose lives were taken too soon by this beast. We’re wearing...

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Birthday Snippets

— 1 — I usually complain that I don’t get good pictures of Aidan, but boy oh boy did he produce photogenic joy for his birthday this year. — 2 — I’d say some tricked out wheels and independence is a great way to start your 11th year. — 3 — He loved getting gifts, though truth be told he mostly loved to drum on them and it took some coaxing to get him to...

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Meet Liam

With total bias, I bring you my favorite guest writer in the series, “Faces of Epilepsy.” As we know, when one person is diagnosed with Epilepsy, their entire family is affected in some way. Liam is my oldest son and here he gives words to what it’s like living with a sibling with a disability. In the interest of full disclosure, I gave him free reign to say what he wanted about us but edited...

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Seven Snippets of February Vacation

— 1 — Aidan apparently doesn’t like green goldfish crackers. It’s true. He looks at them and chooses any other ones one his tray. I love this because it shows purpose and decision. Bring on the ridiculous choices because they’re all his. — 2 — Aidan got to hold dinosaur poop this week. Ok, he also got to hold fossils, dinosaur eggs and bones, but the poop was obviously the coolest. That makes for a...

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Seven Snippets

This post is inspired by another great mom of children with special powers. Check out her link below. — 1 — So we received our first insurance denial for Aidan’s powerchair. They seem to believe he should just be pushed around by a caretaker instead of making waves in this world all by himself. I’m secretly hoping we get to go to a hearing and I can turn Aidan’s powerchair into a little steamroller. Aidan’s...

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Thankful Thursday

This is a special shout out to the Yale nurses who asked, “How do you think Liam is doing as a sibling of a child with a disability?” We are really mindful are trying to carve out time with Liam. The truth is, Aidan requires a lot of care and there’s no way to hide that. However, he’s part of the family, and to Liam, this is what family looks like. Liam and I are...

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Thankful Thursday – Say No to Drugs Edition

The first year of Aidan’s life was incredibly stressful. I desperately wanted answers, was scared that he would never get better, and was certain that I wasn’t the right mom for the job. After a while, I hit my groove. Aidan was slowly but surely getting better/stronger/healthier. Eventually, I gave up the panicked search for a diagnosis, though it’s something that’s still in the back of my mind. It took longer to believe that I...

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MY Breakfast

Don’t cry him a river. ¬†Aidan had already eaten his breakfast (eggs, bleh) but clearly wanted mine (french toast, yum!) Bouns points for his communication skills, tracking skills, and balancing skills. And super bonus points to Daddy for making us breakfast in bed. Now if I could just eat in peace….MY Breakfast Sorry for the technical difficulty. You have to click on the link because it’s too early in the morning for me to figure...

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Highs and Lows

And now for the high. Last week I sat down with official people to go over official paperwork to score Aidan on his skills to prove to the State that he needs help.  Accountability is well and good but this really is a word game and proves absolutely nothing. I had to rank Aidan on a scale of 1-5, 1 being that he can do a skill independently with an increasing amount of support leading...

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Thankful Thursday

Today I’m thankful for nose picking. Really. Pick your nose…right now…go on…no one’s watching. You had to isolate your index finger while folding down the rest of your fingers. You can’t see your nose so you have to cognitively believe that it’s there. Compared to your finger, your nostril is pretty small so you have to be impressively accurate in your picking. If you’re gonna dig, that’s an incredibly precise finger movement. Aren’t you impressed...