Tagged: community

8

Humbled, Grateful, Amazed

My response to an Invitation to Community… It’s humbling to ask for help, but another thing altogether to receive it without even asking. Believe it or not, it’s a bit awkward….and wonderful, and beautiful, and overwhelming. “What about the starving children in Africa? How about the other Medical Moms facing similar journeys? Wouldn’t you rather just bake me a casserole?” In the midst of Aidan’s medical trials, I’ve worked hard to practice the posture of...

4

An Invitation to Community

This post is continued from yesterday and is an invitation from Sue and Talley:       I’d like you to meet the Bowie family—Heather, aka Supermom and serious blogger with a slight addiction to frappacinos; Garreth, Dad, gifted Irish cabinet maker who now shares more of his giftedness as an LNA; Liam, resident funny adolescent with an insatiable reading appetite; and Aidan, giggling social boy who rocks the drums and his power wheelchair through...

7

Community Man

I may have gotten Aidan’s wheelchair totally and completely stuck in the ground at Victoria Arlen’s celebration parade. Fortunately, another mom stopped to ask how she could help. I said, “Well, there was a firetruck in the parade. I really could use some big hunky men in uniforms.” She found someone better… (cue booming echo-y voice) *COMMUNITY MAN! A stranger walked over, said hello to us, and addressed Aidan by name. It just so happens...

3

The Boy Who Said Hi

Meet our third Super Hero: The Boy Who Said Hi. It really is that easy, you know. I was standing in line to meet Paralympic Gold Medalist Victoria Arlen. The Boy Who Said Hi asked his grandfather why they were meeting her. He replied by saying Victoria is a world class athlete who has worked really hard and competed in London this summer. His response was totally strengths based. If that sounds like no big deal...

5

Super Mom

As I listened to the stories of Victoria Arlen’s recovery and achievements at her celebration parade, I turned to my friend and said, “Who do you think drove her to swim practices an hour away?” Though Victoria was critically ill for several years, she will manage to graduate with her senior class this year. Who helped her get back on track academically? Who coordinated with the school and took Victoria to countless medical appointments? Who...

5

Super Hero Week

I met four Super Heros this week. For Real. Two of my favorite realities collided – people with disabilities have special powers and I love the Paralympics. Meet Victoria, our first Super Hero. Victoria Arlen is an Olympic Champion, but being a medal winning swimmer is not her only superpower. Victoria was paralyzed at the age of 11 by transverse myelitis (inflammatory disease causing injury to spinal cord) and was in a vegetative state for several years....

3

A Hearty Eshet chayil

Rachel Held Evans says:  Eshet chayil—woman of valor— has long been a blessing of praise in the Jewish community. Husbands often sing the line from Proverbs 31 to their wives at Sabbath meals. Women cheer one another on through accomplishments in homemaking, career, education, parenting, and justice by shouting a hearty “eshet chayil!” after each milestone.  Great women of the faith, like Sarah and Ruth and Deborah, are identified as women of valor.  Please join...

29

Letter To The Others

You’ve seen me at the playground with my son and passed us in the mall.  He is the one in the wheelchair, the one who drools, and vocalizes with insistence instead of words. I owe you an apology, not for who my son is, but for what I’ve done to you. I tend to be pretty zealous about the words you choose, and in doing so probably shut you down. You see, I really don’t...

3

Just for a Day

Just for a day I forget about seizures, about IEPs and lurking surgeries. Just for a day, I sit on my couch and shush my children so I can hear who won gold; I get on my feet and cheer for every athlete; I look on in amazement as a guy with one leg hops over a high jump. Just for a day (or so) I was glued to the Paralympics and I was moved....

3

Seven Snippets of Inspiration

— 1 — The Paralympics 2012 has been a game changer for people with disabilities. Oscar Pistorius, the double amputee from South Africa also known as the Blade Runner, put them on the map when he competed in the Olympic Games this summer. The Paralympic Committee worked hard to get commentators who are athletes with disabilities and former Paralympians. This served to educate the public as we watched the Games. And the people came, and...