Tagged: awareness


He’s Famous!!!

This is Liam checking himself out on the cover of Pediatric Nursing Journal. Let me repeat that, HE’S ON THE COVER!!! Oh wait, not only that, HE WROTE THE EDITORIAL in this edition. My baby is a published author!!! I’m not even jealous because I’m so stinkin’ proud of him. Liam had the opportunity to write about his experience as Aidan’s brother. It took about six months… really. The truth is, he doesn’t know what...


A Mobilized Community

Do you know how many people die from breast cancer in the United States every year? 40,000. That is 40,000 too many. It’s also just a number. It doesn’t tell the story of lives cut short, family and friends left grieving. It doesn’t speak of the three million breast cancer survivors currently living in the United States who have been changed by their battle. There is good news, however, and it deserves reflection. The good...


1 in 26

1 in 26 people in the United States will develop Epilepsy at some point in their lives. It’s more common than you may realize. Two-thirds of people living with Epilepsy are able to control their seizures and may not be recognized as having a neurological disorder. Check out this video by the Epilepsy Foundation.   Here’s why it matters to me:


Veterans Day

Let me first take the time to say thank-you to our veterans. I’m grateful for your service and your sacrifice. Next, I’d like to encourage everyone to read this amazing tribute to military wives. Thank-you also to our military families who have made incredible sacrifices as well. It’s still Epilepsy Awareness month, and yes, these two subjects intersect. People with traumatic brain injury (TBI) are at greater risk for developing Epilepsy. Our most recent wars...


By the Numbers

Epilepsy is the fourth most common neurological disorder in the U.S. after migraine, stroke, and Alzheimer’s disease. It is more prevalent than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined. It affects 65 million people worldwide. Despite how common it is, epilepsy is among the least understood of major chronic medical conditions, even though one in three adults knows someone with the disorder.” Taken from: Epilepsy Foundation Why it matters to me:...


Thankful Thursday – Horse Poop Edition

I have a friend who describes himself this way, ‘If I were standing in a pile of manure, I’d get excited and start looking for a horse.” That kind of enthusiasm can be so encouraging, contagious, and sometimes helpful. He also appreciates that he needs people in his life who will say, ‘DUDE, YOU’VE BEEN STANDING IN HORSE S@*T FOR A WEEK! Wipe the smile off your face, wash yourself off, and DON’T EVEN THINK...


Letter To The Others

You’ve seen me at the playground with my son and passed us in the mall.  He is the one in the wheelchair, the one who drools, and vocalizes with insistence instead of words. I owe you an apology, not for who my son is, but for what I’ve done to you. I tend to be pretty zealous about the words you choose, and in doing so probably shut you down. You see, I really don’t...


Biggest Cop Out Ever

This post is the biggest cop out post ever and is brought to you by a severe case of writer’s block. And, frankly, dear readers, it’s time you pulled your weight around here. Aidan and I are headed to Yale in a few weeks. Yes, we really are all that.  We’ll be guest lecturing to a class of pediatric nursing students to give our two cents about living in Disability World. So, if you had...


They Did Whaaaat?

Today is World Cerebral Palsy Day. I can’t think of a better way to celebrate than to acknowledge the amazing achievements happening at the London 2012 Paralympics. What incredible things are happening in London right now, you ask? Besides the Irish runner whose mom got to present him with the gold medal, or the blind runner who held up a marriage proposal sign after crossing the finish, or the big Oscar Pistorius upset, or my...


Be The Change – Part Two

Last week I quoted Gandi and the need to “Be the change.” I then proceeded to map out some of the voices in disability world that have been heard and are making themselves heard now. A friend brought to my attention the fact that the phrase is be the change as opposed to make the change or fight for the change. To be sure, the examples I gave are important and there is a need...