Tagged: awareness

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Food for Thought

Food for Thought – November 3, 2014 Edition So here’s the deal: I post just a few things to read each week in case you’re looking for something to read and also because I think they’re important or have moved me in some way. Sharing is caring and all that. I also understand that your time is limited and your reading list may be full. That’s totally fine. But this week, I’m posting just two...

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Waterless ALS Awareness

I believe that everyone has something to give and every gift matters. If you’ve been hanging around this blog for awhile, you know that our community built us an accessible home addition. It took financers and builders, cleaners and cooks, painters and designers and everyone in between. Our volunteers were aged between four and eighty. So this week’s Ice Bucket Challenge left me both very excited and a teeny tiny bit frustrated. First, if you...

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Presumed Competence – College Style

I believe so strongly in families and medical professionals working together that I do my part to make those connections better. Most recently Aidan and I visited a physical therapy class. They were learning how to administer a motor control test. Scoring a test can be very difficult. They have to take in to account how much the client is able to do alone or what kind of assistance he needs. Without a participant who...

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No Stoners Here

I’m the mother of a 14 year old neuro-typical teenage boy – Liam. In the frightfully near future he will probably be offered pot at school. I have told Liam in no uncertain terms that I don’t want him smoking pot. Though he’s a responsible, rule-following first born child, his brain is not fully developed. Teenagers don’t always make the best long term decisions. I don’t want Liam to be pegged as one of those...

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It’s Not All Rainbows and Unicorns

Grab a cup of coffee. We’re digging in deep today. Before we start, please read this post from a mom who has a disability herself and has a child with a disability. Her writing sparked a few robust FaceBook conversations (you should totally friend me so you can be part of those), which is what passionate voices and bold writing should do because respectful conversations are a win-win. Meriah states that “Disability does not suck. The inaccessibility of...

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And Then I Talked About Pissing Contests in Church

I went to speak to our Mothers of Preschoolers (MOPS) group at my church a few weeks ago. Here were these sleep deprived, spit up on moms with newborns and energetic tikes wanting to know how to be part of my world. I got to share how sometimes my journey looks just like theirs (we all celebrate our children and get tired and work hard to see them progress) and sometimes it’s very different (Disability...

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Staring

I won’t tell you to tell your kid to stop staring at my kid. Maybe I should, but I won’t. Aidan is very obviously different than his peers, and kids by nature are curious. We in Disability World can sometimes be quick to think that staring implies negative thoughts which may sound like, “Mommy, what’s wrong with that boy?” Ok, so that’s awkward, but the truth is, something is wrong with Aidan. His brain doesn’t...

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Food for Thought

November 4, 2013 Epilepsy Awareness Edition First I give to you a great website with lots of scientific articles and clear explanations. Epilepsy.com is worth the read. ******** Next I give you another Mainers blog of her life raising a son with Epilepsy. She’s an incredible writer and spares no punches. You will probably cry. Every November Christy has done an incredible job raising awareness and I’m sure this month will be no different. ********...

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Seizures Suck – In Case You Forgot

November is Epilepsy Awareness month. I don’t want it to be a competition between diseases and who makes the loudest noise and has the sexiest celebrity advocates and gets the most funding. Let’s cure breast cancer. Really. Now. While we’re at it, let’s cure Epilepsy too. This post should be full of helpful information to make this awareness month useful. But I’m tired and don’t have it in me at the moment. Maybe later. Right...

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It’s Just About Getting the Words

“It’s just about getting the words,” my chorus director said. She had 200 deer in the headlights faces looking at her as we were attempting to learn a new piece of music. We were singing in an unfamiliar African language. For the most part we had the tempo and tune. That was actually enough to covey that it was a joyful song. But about what exactly? I think about all of the ways Aidan communicates...