Really?!? My Life as a SNL Skit…
So we have good news and, um, well, news that is totally in line with Aidan’s MO. Let’s start there. We had a follow up doctor’s appointment today. Now generally when I take Aidan to the doctor they use a lot of big words to say, “Hmmm…that’s weird. Dunno what to tell you. See you in a year.” I think today was worse. The neurologist and his partner both looked at video of Aidan having his “episodes” and said they sure looked like seizures. Then he read the EEG. He used a lot of big words to say, “Not only do I NOT have an answer for you, I found another problem.” Really?!? We couldn’t make this easy just once? So, here it is. Aidan is NOT having seizures. No diagnosis, no solution, no surprise. He IS, however, having electric blips in his brain that are in no way related to the initial problem I brought him in for. These blips put him at greater risk for having seizures and he still has his “episodes” for no apparent reason. Really?!? Because we needed more problems and fewer answers? Really?!? So this is obviously frustrating because Aidan is not very safe when he eats and these “episodes” are getting more frequent.
Let’s move on to the good news. Garreth was diagnosed with Celiac disease. This is an auto-immune disease that makes him unable to eat gluten. Gluten is a protein found in wheat, barley, rye and some other bizarre places such as sandwich meat, chicken broth, and the vinegar that goes really great with fries that you eat out of newspaper wrapping. Really?!? He couldn’t just give up bread, pasta, and cereal and call it a day? I’ve added some gluten-free blog links to this site. Here’s what’s so great about this diagnosis……the solution is just a diet change and with that he could feel human again. Both boys have been tested and neither have it. Cue Hallelujah Chorus.