So I’m throwing this out to my readers – what should I blog about next? I’m open to questions. This is sort of my way of saying, “I kind of have writer’s block so could you pull your weight around here and at least throw me a topic?”
I’ll start by answering a question from last year’s readers’ choice that I never got to. Reader Sherry asked about the stupidest thing someone has said to me about Aidan. At that time, honestly, I didn’t have an answer. Yes, I’ve had plenty of frustrating conversations with school personnel and confusing conversations with medical personnel. I’ve certainly had pull my hair out conversations with insurance companies. Young kids have asked questions about Aidan that I think are appropriate. So, no stupidity or offense.
However, we found it this year, and twice in the same month with the same comment from different people both in the medical field. Isn’t that weird? Let me clarify that these were medical professionals who hadn’t had contact with Aidan yet nor were they in the field of neurology. I don’t expect everyone to know everything. I described Aidan’s seizures as repeated jerking motions or generalized myoclonic seizures. Both responded with, ‘Oh, so they’re not real seizures.” I didn’t freak out because I knew that what they meant to say was, ‘So they’re not grand mal seizures.” Those are the bad boys that make you fall to the ground and turn blue, terrifying on a level I’ve never felt with Aidan. I completely understand the difference.
However, not being real? So I’ve lost sleep over nothing. I’m seeing several specialist over no big deal. I fed my kid zombie inducing meds just for kicks. Ummm,no…they’re real. This is one thing I wish to educate people about simply because I wish I’d known earlier….seizures can present themselves in many ways. Each different….each real.
So, do you have a question or topic for me? Contact me.