Thoughts on life, disability, and the power of connection.


Seven Snippets

— 1 — Have you ever had the philosophical conversation about walking and talking and which is more important and which you could live without? Some parents would not change their child’s disability because they believe it is the unique quality that makes them who they are. I definitely have an opinion on that but, it’s complicated, and there is no “right” answer. Robert Rummel-Hudson writes about this question in regards to his daughter and...


A Mobilized Community

Do you know how many people die from breast cancer in the United States every year? 40,000. That is 40,000 too many. It’s also just a number. It doesn’t tell the story of lives cut short, family and friends left grieving. It doesn’t speak of the three million breast cancer survivors currently living in the United States who have been changed by their battle. There is good news, however, and it deserves reflection. The good...


1 in 26

1 in 26 people in the United States will develop Epilepsy at some point in their lives. It’s more common than you may realize. Two-thirds of people living with Epilepsy are able to control their seizures and may not be recognized as having a neurological disorder. Check out this video by the Epilepsy Foundation.   Here’s why it matters to me:


Happy Thanksgiving

Here I give you my favorite Thankful Thursday posts: I’m thankful for the beach. I’m very thankful for other seizure moms. And most of all, I’m thankful for nose picking. Not that it’s a competition, but I’m probably more thankful than you are. Have a Happy Thanksgiving!


Counting Blessings

I stand by my words that I don’t simply want to count my blessings; I want to grow a space in me where contentment has a stronghold. Sometimes that means taking a moment to count my blessings, and sometimes it may seem like I’m digging deep to count. So here goes: I’m really thankful for my physical therapist who writes letters to justify Aidan’s medical equipment. My response to the letter we got from insurance would...


Veterans Day

Let me first take the time to say thank-you to our veterans. I’m grateful for your service and your sacrifice. Next, I’d like to encourage everyone to read this amazing tribute to military wives. Thank-you also to our military families who have made incredible sacrifices as well. It’s still Epilepsy Awareness month, and yes, these two subjects intersect. People with traumatic brain injury (TBI) are at greater risk for developing Epilepsy. Our most recent wars...


By the Numbers

Epilepsy is the fourth most common neurological disorder in the U.S. after migraine, stroke, and Alzheimer’s disease. It is more prevalent than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined. It affects 65 million people worldwide. Despite how common it is, epilepsy is among the least understood of major chronic medical conditions, even though one in three adults knows someone with the disorder.” Taken from: Epilepsy Foundation Why it matters to me:...


Humbled, Grateful, Amazed

My response to an Invitation to Community… It’s humbling to ask for help, but another thing altogether to receive it without even asking. Believe it or not, it’s a bit awkward….and wonderful, and beautiful, and overwhelming. “What about the starving children in Africa? How about the other Medical Moms facing similar journeys? Wouldn’t you rather just bake me a casserole?” In the midst of Aidan’s medical trials, I’ve worked hard to practice the posture of...


An Invitation to Community

This post is continued from yesterday and is an invitation from Sue and Talley:       I’d like you to meet the Bowie family—Heather, aka Supermom and serious blogger with a slight addiction to frappacinos; Garreth, Dad, gifted Irish cabinet maker who now shares more of his giftedness as an LNA; Liam, resident funny adolescent with an insatiable reading appetite; and Aidan, giggling social boy who rocks the drums and his power wheelchair through...


Potty Talk

My friend Sue asked me asked me a few months ago if Aidan could use the one very small bathroom in our house. I replied, “Of course he can.” Turns out, she was asking the wrong question. Although I’ve actually appreciated blog posts about toileting issues for kids with disabilities, I’ve made a decision not to write about them.  I will, however, attempt to give you some basic information and you’ll have to fill in...