Thoughts on life, disability, and the power of connection.

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First “date” for the family-therapist dance

I’m honored today to introduce you to Aidan’s physical therapist. Karen has been with us since Aidan’s birth. She’s seen us through several orthopedic surgeries, supported him outside the school setting, and has put up with my, um, instense honesty.  ***** Oftentimes, I am the first regular “service provider” a family comes in contact with when they first enter “disability world.” They may have just come home from the hospital after their child’s birth or...

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AAC Happenings

I have some AAC activities to share but first take a look at this video. Check out how Charlie uses his words. Pay close attention to who he speaks with (lots of people), what he talks about (everything), where he has his talker (in a variety of settings). Hence, all the words all the time.   And here are two excellent resources to give your modeling a boost. Take some pressure off of your AAC user...

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On Receiving

I recently found myself recalling our home renovation project to a friend. It made me go back to the Bowie House blog and re-read everything. I still can’t quite believe my community came together to make my home accessible for Aidan. Amazing! I have a few posts I’d like to re-share from those days. Enjoy! ***** In discussing our home remodeling project with a friend, she remarked that I receive with such grace. I know I’ve been...

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Hangers

I recently found myself recalling our home renovation project to a friend. It made me go back to the Bowie House blog and re-read everything. I still can’t quite believe my community came together to make my home accessible for Aidan. Amazing! I have a few posts I’d like to re-share from those days. Enjoy! ***** Nineteen years ago Garreth moved my clothes from one apartment to another while I was taking final exams. We...

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It’s just hair

I got my hair cut before Christmas. Really cut. Super short. I picked Liam up from school and because I’m raising a thoughtful and sensitive male (excuse me while I pat myself on the back) this is how he responded: Liam placed his hand gently on my arm and said, “Mom, you got your hair cut. Is something wrong? Is there something we need to talk about?” Oh that precious boy who thinks a haircut...

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Keepin’ it real cuz it’s all so hard

I haven’t written and I need to write. Also, I’ve been wanting to show you my new Stitch Fix outfits but it turns out taking pictures of me is hard. Me being camera ready is hard. I highly recommend that you go to Mary Evelyn’s blog to see how a real mom works the camera and then feel free to come back here for a giggle. This is me wondering if Liam is really taking...

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The truth about talking

I’ve been super braggy here and in real life about Aidan’s success with his talker because it has been life changing and long coming. I’ve gone on to tell other parents, “you can do it” and “start here.” I’ve shared that Aidan is sending me text messages from school when I’m sitting at Starbucks. That was probably one of my favorite moments. It came maybe a day or two after having to have a little...

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Seizure

Remember the time your kid had a seizure and instead of choosing Denial, which is Optimism’s twin, by making a grilled cheesed sandwhich, you chose to be the Responsible Adult and give him meds but the needle didn’t work and so you texted your husband but instead of texting your husband you actually texted several of your siblings who immediately texted back freaked out that you were talking about needles and drawing air? Remember how...

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Food for Thought

Food for Thought – December 7, 2015 With potential to save lives, CRISPR already sparing mice Whereas the old method, which relied on genetically engineered stem cells, could take as long as a year to produce a mouse strain, a new model can be created in just weeks at a fraction of the cost. Advent: for the ones who know longing As I learned in particular through our lost babies, one after another after another,...

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Thanksgiving Magic

Thanksgiving was amazing. Turkey? Yes. Dessert? Yes and yes. Vegetables? In moderation thank-you very much. But it was the words, oh the words, that were the best part. Let me back up. A few weeks ago Aidan’s teachers asked to add color words to his talker. I still get so greedy for and stingy about adding words to the talker. ALL THE WORDS ALL THE TIME. Let’s open more more more so Aidan can say...