Thoughts on life, disability, and the power of connection.

9

On Preparing

We leave for the hospital tonight. Aidan’s hip surgery is scheduled for first thing tomorrow morning. After months of fretting the unknown, and then gaining a better understanding of the procedure and recovery, we are ready. We have confidence that we’re in very good medical hands and have been surrounded by tons of support. We know what we fear. It’s not the actual medical procedure, though I don’t love the idea of cutting into bone...

1

Thankful Thursday – SuperHero Edition

Today I’m thankful for the people who reframe disability, like Marvel comics who went out of their way to design Avenger Blue Ear who wears blue hearing aides to encourage five year old Anthony Smith. How cool is that? He even gets to meet Iron Man. Robyn of Tiny Super HerosĀ is educating others and encouraging kids in a similar fashion. She sends out Super Hero capes to kids. Check out her blog. Aidan will be...

2

April 13th

Several years ago I invented Undiagnosed Children’s Day. I just claimed the day, asked people to wear blue, and wrote a little about what it meant to have a child with an undiagnosed disability. Last year, one night before April 13th, I asked Dana to celebrate with me. Nothing like putting another mom on the spot with no time to prepare. She rose to the occasion to continue telling her story. Honestly, I still run...

3

Thankful Thursday – Florida without the Mouse

Today I am thankful for my vacation. While there are so many layers to this comment (the mountains that were moved to get us to take vacation, what it did for my body and soul) I will just give you the highlights for now. Garreth and I went to Orlando without kids. Did you get that? Without kids. We haven’t been without them in years and I cannot tell you how fabulous and amazing and...

3

Little Professor at it Again

(Aidan had another teaching gig recently with physical therapy students. This is a repost from his gig last year. To read more about Decision Wheelchair check out my turn in a chair, thoughts about the manual chair, and power chair and why even have a wheelchair?) “Gather round and listen up kids.” A few weeks ago Aidan had another teaching gig with a class of physical therapy students. They were learning how to administer a...

4

How My Husband is NOT Romantic

(Y’all seemed to like this post so I’m reposting for Valentine’s Day) So if you had been following me on Facebook you would know that in advance of my recent 40th birthday my husband did the following things: brought me home a whoopee pie and stuck some candles in it,bought me a dozen red roses,and then deep purple lilies,wrote our vows on the bathroom mirror,packed me a snack for a long day and cut my...

4

Thankful Thursday – Medical Records Smack Down

Dear Medical Records, Thank-you so much for guarding our medical records with such incredible stringency. I realize I took the time, effort, and risk to put my child under anesthesia for some medical tests but in no way did that mean I actually wanted the ordering doctor to get the results of said tests. I know that seems logical, but we both know logic is silly. I’m glad you tucked those result away with the...

13

Friends Don’t Let Friends…

Friends don’t let friends go to doctors’ appointments alone. Yesterday was Aidan’s pre-op appointment for his hip surgery in March. Oh my word. It was an all day process. I feel like I went through a bizarre initiation process. We’re not in Kansas anymore, Toto. This is a MAJOR MEDICAL CENTER. Once you leave a small local hospital (where we have received excellent care) and go to a MAJOR MEDICAL CENTER, everything about the experience...

8

No Time to Waste

I bought a watch this week. It’s simple and pretty and it tells time. Time flies. Don’t waste time. Time marches on. Time standsĀ still. There’s no time like the present. I bought a watch this week even though for 40 years I’ve never worn one. Well, there was the brief time in middle school when Swatch watches were super cool and I had a black one. It meant I belonged, that I was Somebody. I...

1

No Big Deal

I’m sitting in a hospital waiting room…again. It’s no big deal, really. Just a super fast CT scan of Aidan’s hips to make sure we have all the information we need for his hip surgery in March. The doctor was so kind to attempt the CT scan without anesthesia since it’s only a thirty second scan. Aidan couldn’t do it. He relaxed under the warm blankets and smiled at the radiologist, but he wouldn’t let...