Thoughts on life, disability, and the power of connection.

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Three Years Later

It was three years ago this week that Aidan was officially diagnosed with Epilepsy. He had been having seizures for two years at that point but it took us that long to realize what we were seeing. There are just so many other issues with Aidan that compete for our attention and his seizures didn’t look like anything I’d seen before. Now we are paying attention. We don’t live in fear each day. We get...

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Food for Thought

January 6, 2013 So Much to Say – Today.com This is an article about a woman who asks people on a subway to write a poem “People have so much to say,” she says. “It turns out everyone can write. It is so touching to talk to people. We share many of the same thoughts, desires, and experiences.” ******** *******   ******** Remember, subscribers need to click through to view videos and I promise they’re worth...

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A Year in Review

As much as 2012 was the year I was ready to see gone, I’m still pinching myself and wondering if 2013 really happened. My community built an accessible addition onto our house where Aidan can wheel around safely and freely. Besides being amazed at the time, energy, effort, and money that people so generously gave, I’m still savoring every story made along the way. Aidan had major orthopedic surgery and we survived the intense recovery...

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A Picture’s Worth

Reposting from last Christmas because it’s so darn cute and I still have mad parenting skills… It’s a scene that happened all across the world on monday night: A church service of lessons and carols to set the stage for Christmas. After an hour of hearing the familiar Bible story of the birth of Christ and soaking in words of the Peace and Joy of the season, we get to light our candles and sing...

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No Stoners Here

I’m the mother of a 14 year old neuro-typical teenage boy – Liam. In the frightfully near future he will probably be offered pot at school. I have told Liam in no uncertain terms that I don’t want him smoking pot. Though he’s a responsible, rule-following first born child, his brain is not fully developed. Teenagers don’t always make the best long term decisions. I don’t want Liam to be pegged as one of those...

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Food For Thought – December 16, 2013

Food For Thought – Artistic Edition December 16, 2013 Check out this photography project, called the Pink Tutu, that a man started to bring laughter to his wife who was undergoing cancer treatment. ******** Here’s a flash mob choir that sings a song written by a teenager who died of cancer. ********* This video is adorable and hysterical.  A young girl signs her Christmas concert for her deaf parents as she sings. ******** Did you see this beautiful Mandela tribute...

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Let’s Go Parking

I have a request on this busy shopping weekend before Christmas. Please don’t park in the handicap parking spaces unless you are permitted to. Here’s why. On any other day I have a Plan B. I park in the middle of two parking spaces so I have room to let out Aidan’s side lift. In the next week there won’t be a parking lot anywhere with two spaces next to each other, nor is that...

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The Importance of Cute PJs

Raise your hand if you’ve seen the episode of Modern Family where Claire puts off calling 911 for a few minutes so she can change into her best outfit complete with plunging neckline. That was exactly what happened to me last week if by best outfit you mean PJs and by plunging neckline you mean soft flannels. It’s just how I roll, and oh yeah, I was actually stuck in my PJs. Here’s the scoop…....

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Food For Thought

Food For Thought December 9, 2013 Edition There are many gift guides circling the internet right now but I’d like to draw your attention to this one by Addie Zierman. This time of year can be particularly difficult for people who are grieving or struggling and Addie’s gift guide has beautiful ideas for honoring people’s pain in the face of all of this Christmas cheer. ******** And speaking of loss…in New Jersey where medical marijuana...

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Unicorns Are Real

If you follow me on FaceBook, which you totally should, you would know that I saw TWO unicorns today. If you define unicorns as beautiful, miraculous creatures that are magical, which Websters most certainly does not, but I do, so there. But let’s back up to my first unicorn sighting several months ago. You will NEVER guess where the unicorn was frolicking. Seriously. I’ll give you a hint…it’s the LAST place you’d think of. Exactly....