Aidan drove in the dark the other night.
With wild abandon.
Garreth and Aidan had just picked Liam up from a school event and instead of heading inside for bed, Garreth decided to let Aidan roam. Aidan looked back once as if to say, “Are you sure you’re ok with this because I’m not afraid to hightail it outta here?”
Garreth stayed close for safety, of course, but always out of Aidan’s line of vision to let him feel alone.
Much giggling ensued.
Sometimes I feel like I’m driving in the dark on Aidan’s medical journey. I’m a researcher and a note-taker and question asker so I don’t quite drive with wild abandon. Sometimes I have to work hard to shed myself of guilt. I give medical decisions the weight they deserve. The darkness is less fear these days and more wondering. What’s out there and where exactly are we going and who will we meet along the way?
There is also, if not outright giggling, then at least deep gratitude. It may seem weird to others what makes me happy. I’m very excited to be on the cutting edge of science and to have if not a name than at least a gene to possibly explain Aidan’s medical issues. Something big is happening here. I’m incredibly grateful that our orthopedic surgeries are behind us and Aidan is using his new body well. I’ve learned that my marriage has a sweet spot and it’s during a medical challenge. Strange, I know, but I’ll take it.
And when I think about Aidan’s mobility, well, there probably is no greater joy for me than that. Damn that kid is smart. I believe there is a game of flashlight tag in our very near future.
And the laughter will be contagious.