With total bias, I bring you my favorite guest writer in the series, “Faces of Epilepsy.” As we know, when one person is diagnosed with Epilepsy, their entire family is affected in some way. Liam is my oldest son and here he gives words to what it’s like living with a sibling with a disability. In the interest of full disclosure, I gave him free reign to say what he wanted about us but edited some rambling humor. To hear more from Liam check out his blog.
So I’m told that my perspective as Aidan’s brother has been requested worldwide. There have been requests from England, New England, America, the USA, the, um, America 2.0, anywhere you can think of. (I can see the comments already, “Oh Liam you’re such a wonderful writer. I think you should write for a living.” and, “Your sense of humor is amazing. I like how you put things in parentheses.”)
Where was I? Oh yes, being Aidan’s brother. Surprisingly, it isn’t that difficult. Aidan is actually a lot easier to deal with than my parents. When Aidan was in elementary school this is basically what my mom did: Mom see IEP. Mom not like. MOM SMASH!!! Well, maybe not that dramatic, but she is very loud. Anyway, back to Aidan. The worst thing about having someone with a disability in the family is that we don’t get free things like wheelchair-accessible Lambos (That’s Lamborghini to any old school people).
No, actually I think the worst thing is that we get less family time. Aidan has therapy that takes away all of our family time, and it takes a long time to feed him, and he has to be changed, and he goes to bed early. Aidan’s wheelchair is limited to what it can do, like Aidan, so we can’t go to places with stairs. The only time that I’ve been frightened about Aidan was when my parents went to the hospital with Aidan for a “day” and left me at my friend’s house for a week with no means of contact (phone and e-mail aren’t real contact). Most of the time the seizures aren’t that scary, but sometimes Aidan bonks his head when he has them and starts crying and then everyone gets grumpy. That is about all I can think about (aboot to any Canadians out there) Aidan right now.
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