I know Liam already got to share his story for the Faces of Epilepsy series. However, he recently had a writing assignment to write anything from a chapter of his life. He chose to write about Aidan’s hospitalization with no help from me. I found it very insightful. Please take the time to read it here.
I emailed Liam’s teacher to tell her what a thoughtful assignment this was. I’ve asked Liam about this incident plenty of times, even asked him to blog about it, and never got as much detail as she did. After telling her that the doctors and I are not quite as neglectful as we’re made out to be, I relayed that it was interesting to read his very different perspective. There was never a time when the doctors did nothing; I did not have to badger them into giving tests; I wasn’t gone for as long as it sounds; we knew where Liam was every moment of the day and provided for his care in advance.
Here’s the thing – this is HIS story, it’s HIS truth from HIS perspective. I can’t quite argue with that. This is why I’ve felt so passionate about giving people a chance to tell their Epilepsy stories – they’re all so different even though they’re centered around the same beast. To hear someone say this with much more eloquence and power watch this TED talk (yes I’ve posted it before).