Aidan’s getting some wheels this year. (Wait, haven’t we already done that?) Aidan is a walking boy and that is a huge victory. The thing is, he walks short distances and requires some assistance. Right now we use a gait belt and hold one of his hands to help him get around. He can turn his body to tell you where to go (Remind me later to tell you about the stairs fiasco). So far we’ve used an adaptive stroller when we go out and about. But he’s growing up and it’s time to move on and get that boy some wheels. A wheelchair means independence and independence means victory for him and chaos for us.
Now we face big questions like, manual or power? Big wheels in the front or back? Paper or plastic? Wait, I’m pretty sure it’ll be metal and stuff. We have our first manual trial wheelchair at home. Guess what? Aidan totally knows how to use it. His hands went right on the wheels and he started moving around. It’s pretty dang exciting. It seems he’s been waiting for this moment. Do you know what mobile children do? Of course you do, but I had forgotten. They’re little terrors that get into everything. Being on this different journey with Aidan has completely changed our perspective. There’s been a lot of, “Go ahead Aidan, empty all those towels from the drawer.” “You can go pull every magnet off the fridge.” “Feel free to roll on up to that other chair and just make a loud incessant banging noise.” We’re celebrating the chaos.
And one last bit of housekeeping – Aidan and I will be speaking the the fabulous Yale Pediatric Nursing students on Sept 28 so please let your voice be heard. Contact me or leave a comment about what you wish nurses knew about your medical journey as a parent or patient.