In the Beginning – Part Three
Update Week 3 from my sister Becca
We finally have some good news! Aidan may have a transiently elevated level of an enzyme (tyrosenemia) which is treatable with Vitamin C and could be reversible. He was started on Vitamin C on Monday and they are going to take a level on Friday.(This did end up bringing his levels to normal but had nothing to do with the big picture). They don’t know if it is linked to the hypotonia but they are surely hoping that there is some kind of relationship. We are still waiting for more blood work from the Mayo Clinic. We all remain extremely optimistic.
Aidan will have surgery to have a G-tube put in for feeding on Monday. Heather continues to try to breastfeed and bottle feed and that won’t stop when he has his G-tube. Feeding via a G-tube in really simple.(Simple,yes, but also emotionally sucky) So, this hopefully means that Aidan can have some sleepovers with Boo-Boo (That’s me).
Heather and Garreth continue to be overcome with emotion in response to everyone’s love and well wishes. Keep the positive spirit coming.
Garreth and I stayed at the Ronald McDonald House when Aidan was in the hospital. Garreth would tuck me in at night with the help of a sweet little pill, then he would head back over the the hospital to snug with Aidan. If it was a quiet night, Garreth and the nurses would each snug a baby and circle up in their rocking chairs to shoot the breeze. One morning we woke to see this picture in his crib that one of the nurses took. She put a beard on him because he looks so much like his bearded Daddy.
*This is the story of Aidan’s first few months. It starts here. The bold print are my present day thoughts.