In the Beginning – Part Thirteen
Week 10 Update by Becca
As of today Aidan is still off Oxygen. Way to go kiddo. He was started on Pedialyte through his G-tube yesterday and yummy formula today. It is still the constant feed and they will work up to the bolus feed in a few days.
H+G are going to the hospital tomorrow to begin their training and to discuss discharge planning. Aidan could be home by the weekend.
Anne, Garreth’s mum, arrived Thursday and will be visiting until next week. She, of course, has been a great help.
As I have said before, Aidan looks and acts so much healthier. I hope you can see it from the pics. I know, the auburn hair is difficult to see but it’s really a light red. I also added a family pic with Nana, our mom; she’s holding Liam; my husband Bill who is holding Aidan; Garreth; Heather, who is holding my daughter Madison; and my mom’s sister Tory.
This was also around the time Aidan was transferred from Boston to Maine. I was the last person in the world to buy a cell phone but I bought it when Aidan was in the hospital so I could be reachable. I also went to a mom’s luncheon and pretended to be a regular person. My first cell phone call was at the luncheon to say that Aidan had just been put in the ambulance and was being sent back to Maine as expected. It was a weird experience to pretend to be a happy composed new mom while wanting to scream that my son was in an ambulance heading back to intensive care. I was talking with someone who was asking me all of the regular questions about my new baby. The sleeping through the night questions gave way to the “he’s been in the hospital” conversation. I’ll never forget her response. This stranger looked at me with a smile and said, “You must be Aidan’s mom. We’ve been praying for him.” It was great. Kinda felt like a celebrity. No drama, just tons of compassion.
The update three days later read:
Aidan will not be going home just yet. What’s the rush, right? The nurses tried to bolus feed (lots of food in a short amount of time to simulate a regular eating schedule) with Aidan but he didn’t take to it at first. It interrupted his breathing. H+G received a feeding pump from the durable medical equipment company that they will try out with Aidan this weekend under the supervision of the hospital staff.
I think it was around this time that Becca came to return Liam to me after a stint with Pop. The first words out of her mouth were, “I had nothing to do with this.” Turns out my Dad took Liam to get his first haircut and my sister thought I might freak out. I have to say, it was a strange realization that life was going on without me. However, once you’ve done time in the NICU, who really cares about hair? (still how I feel) Pop had also taken Liam to see the loud, over-stimulating, traumatizing movie “The Perfect Storm” and got him popcorn to boot. A miracle he survived.
*This is the story of Aidan’s first few months. It starts here. My present day thoughts are in bold.