In the Beginning – Part Fourteen
We had a great weekend at the hospital last weekend as a family—me and Garreth and his mom and Liam. We were finally able to take Aidan off his monitors, just walk him around a bit and sit in the waiting room which is full of natural light. Liam even asked to snuggle Aidan. He did a great job holding him and kissing him. This, of course, was a great photo op. Liam was touching Aidan’s ears and nose and didn’t seem to bother with the G-tube. Liam also informed me that Aidan really liked to play with Thomas The Tank, also in the waiting room. It was nice to be able to walk around and see the boys playing together. Garreth and I saw several people from Aidan’s medical team. We’ve been using the pump he will take home from the hospital so we can get used to it. Aidan is now eating every 4 hours and is on a continuous feed overnight. He even started a bottle and has done great for the past few days taking 30-60cc of his 130cc total feed. He is officially measuring at 1 month of development. Aidan certainly responds to noises around him but doesn’t look around or react with his face as much as he should. There is still no diagnosis and probably won’t be one for a few years.
We thought we’d be home by now but Aidan decided to throw the doctors for one more loop. He’s doing his Bad Boy Blue routine again. His respirations are shallow and he drops his O2 levels. He always snaps out of it on his own before his heart rate gets too low. He did this a lot in the beginning but then has been doing great for the past two weeks off oxygen. So they put him on oxygen again. They’re still looking to send him home as long as he can stay stable for awhile. No one is saying when. Now it’s looking like he’ll come home on oxygen and monitors for at least some of the time. I think the doctors will be ready to see me go. I left them a “To Do” list in Aidan’s crib, which they’ve been doing well with. I’ve also been fiddling with his oxygen levels. Ok, so I realized very quickly that I turned him down too low, but we found a happy medium. He was on 1/4 litre in Boston and is now on 3/4 litres. We’ll have to make a few more trips to the hospital to learn more about how to take care of him.
Aidan’s prayer team has officially reached 5 of the 7 continents with Australia and Antartica yet to be reached. We truly appreciate your continued prayers, cards, meals, etc. We’ll be in touch when we know the next step.
*This is the story of Aidan’s first few months. It starts here. My present day thoughts are in bold. Join us today on FaceBook (Aidan TeamAidanBowie) for Thankful Thursday.