In the Beginning – Part Eleven
Update Week 8 by Becca
Good evening everyone. Heather spent the weekend with Liam and Joshy (brother) at home while Garreth had a little father-son time in Boston. Joshy is moving to California in two weeks and Heather wanted to get some time in with him before he leaves. It was a great weekend.
As for Aidan, he had a quiet weekend with his daddy. The plan as of last thursday was for one more MRI to be completed. The docs are in disagreement as to what they are reading. Regardless of the determination it will not be an “ah ha” moment. It may just provide a bit more information.
Aidan will then be sent back to Maine for the Nissan valve and G-tube surgery.(Remember when they started talking about that weeks ago? Garreth actually remembers being at the hospital without me when they wanted to give Aidan a blood transfusion to beef him up for surgery. He felt the pressure of making a big decision. While he was confident about the decision, he was anxious about telling me….Mama Bear. Really? I was so fine with it and probably glad to have been let off the hook on that one.) The nurses will begin to teach H+G how to care for Aidan so that they are the most prepared they can be for his discharge home, which should be shortly (oh, if I had a penny for every time I heard that one…)
We are still waiting for the genetics testing to come back but that won’t hold up the transfer back to Maine. It is a possibility that Aidan won’t have a diagnosis.(Really? I had formerly been under the impression that doctors knew everything.) One doc said that those kids often times do the very best. We should know more his week.
Wonderful stories have been shared with me over the last several weeks on how we’ve spread our love and prayers around. The Bowies had friends vacationing in England on May 1 and wanted to stop and pray for baby Aidan. They happened to stop at a church called St. Aidan’s Chapel. (and they sent us a lovely card and bookmark of a drawing of that chapel and I still have it as a reminder of how widely covered in prayer we were.)
Heather returned to her choir two weeks ago. She was called to sit before the 200 women who then sang to her a Scottish folk tune. Its message was “we are all in this together supporting you.”
My friend Liz shared a baby Aidan email with a co-worker who brought the picture of Aidan to her church that evening. She and her prayer circle are praying for Aidan over the next month.
Friends and family continue to stop in a and snuggle Aidan. Please remember to write something in the journal.
*This is the story of Aidan’s first few months. It starts here. My present day thoughts are in bold.