Food For Thought
What I Learned About Love as a Pediatric Nurse – On the Huffington Post
I believe in love the way I have come to believe in Dopamine, Lasix, and ventilators. I have learned a lot about medicine as a nurse, but I have learned more about the power of the human condition, in these cramped rooms full of machines and prayers.
“Parents — and patients themselves — can be invaluable assets in making great breakthroughs in patient care, especially with rare diseases,” said Dr. Ellen Rome, head of adolescent medicine at Cleveland Clinic Children’s. “Families represent a motivated group striving to find what is best for their loved one, and may have the time and energy to sift through information to find that one pearl that helps a child or adolescent turn the corner.”
When You are Afraid – On Genetic Testing and Muscle Memory – Michaela Evanow
You see, when your first child is diagnosed with a deadly disease, all you know is grief and fear when it comes to mothering. When someone says, Don’t worry, I have to acknowledge that all I know is worry. And that’s okay. My motherhood journey so far has been full of it. I had two blissful, worry free months when Florence was a newborn, and then it all crashed. My muscle memory is caught up in the ugly and the hard, so it keeps going to that place.