Flashing my Pecks
Thanks to BlogMaster Uncle Joshy for wanting to know “How and where do you find the courage it takes to fight for
your child? I’m sure school can be a big fight but who else do you have to flash your pecks to?” I mostly wanted to write this post because I love that image of strength. I’m pretty sure I’m wearing heals and some sort of superhero cape. The truth is, I’ve been surrounded by a great group of people caring for Aidan. I’d say the hardest and most exhausting part of flashing my pecks is the follow through. When someone says they’ll do something for Aidan (yes, I’ll get a copy of that record or make that referral or write that support letter) I always need to follow up and nine times out of ten it was completely necessary. There was a time the order for his first wheelchair sat on someone’s desk for 3 weeks because they needed to ask me an insurance question. We’ve been sent to collections because this insurance didn’t talk to that doctor who failed to contact superman. My favorite was when I called my insurance to give them some magic number to make some fabulous thing happen for my son and they asked why I was calling, as in, it’s really someone else’s job. Yup, it is, and I do it anyway. Then there are the times I need to take all the information and make a final decision. When do we take out the g-tube (that’ll be a juicy post someday) should he really wear arm bands to stop him from pulling on his glasses even though it’ll prevent otherwise useful movements? It’s frustrating and taxing at times but if I don’t do it, who will? I’m not particularly courageous and I’m sure not a superhero. Like many of you, I’m something better – I’m a mom. Up, Up, and Awaaaayyy….