So tomorrow is a big day. This picture is of Aidan having a 24 hour EEG about 2 years ago. Tomorrow, he goes in for another one. Aidan has been having seizure like activity for awhile now and we need to get a clear diagnosis. The hardest thing about this year has been watching Aidan lose a skill (independent eating) and become unsafe at times because of this action. Before this, Aidan had made steady progress. As a glass half full person, I will wait for more information and be ready to soldier on after that.
Right before Aidan goes to the doctor tomorrow, Garreth has his turn at a different hospital. Garreth has had health issues for as long as I’ve known him. Anytime we come within reach of a diagnosis and possible solution, it slips through our fingertips. Being married to someone with chronic health issues bring with it very different dynamics than being a mother of a child with a disability. It’s challenging in a whole different way. My BFF recently told Garreth that he gave up the right to do nothing about his health the day he got married. Garreth certainly hasn’t done “nothing”, but he easily reaches his frustration point. We’re narrowing in on a diagnosis and I’m trying to contain my enthusiasm. I could have a healthy energetic husband who can maintain that through diet instead of drugs. It would be all my Christmases come at once…but don’t tell him that because real presents to unwrap are still pretty great.