Counting Seizures Again
How many seizures is enough and how many is too many? The right answer is one. One is enough and one is too many. I don’t have the luxury of that answer anymore. We’re on week eight of Aidan’s new diet to control his seizures. Garreth and I agreed not to work the numbers until September and then we would evaluate. I’m not sure what the magic number is that we’re supposed to accept. One of his doctor’s asked what his quality of life is. He suggested that it’s not so much about attaining a magic number but deciding if Aidan’s seizures interrupt his life. Hhmmmm…
I definitely feel like Aidan is safer eating now. That was what really drove us to getting a solution. I can’t help but think we’ve had more good days than bad. He’s not doped out on drugs and we haven’t had to do blood draws. All of this is good.
But still…..I’m trying to convince myself to be happy with under 15 seizures when I really don’t want any at all. Sometimes it infuriates me that there’s a boogeyman in my son’s brain messing with him while I watch helplessly on the outside, just counting. Just let me at him. I’ve resorted to the super mature act of stomping out of the room so I couldn’t count any seizures I don’t see. ‘Cause I’m apparently 5 years old and not the Super Mom I’ve claimed to be.
For now we count, we do some fuzzy math, we discuss, then we decide.