Category: Mobility

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Our DME Miracle

You know how you feel about your hairdresser? How much money you’re willing to pay, how far you’re willing to drive, and how you won’t let anyone else near you with scissors? She just knows, right? That’s how I feel about my DME guy. That’s Durable Medical Equipment for the uninitiated. I had to metaphorically kiss a lot of frogs before I found this guy and I’m keeping him. Considering the level of DME Aidan...

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Going Up? Nope.

I’m thinking we are fiercly independent creatures by nature, that it’s less of a Yankee thing and more of a human thing. The toddler that shrieks, “do it MYSELF” becomes the adult who dismissively says, “I’ve got this.” We miss out on so many incredible experiences if we live life that way. In Disability World I believe we’re smacked in the face with being both overwhelmed by the sheer complexity of what it means to...

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Night Rider

Aidan drove in the dark the other night. Fast. With wild abandon. Garreth and Aidan had just picked Liam up from a school event and instead of heading inside for bed, Garreth decided to let Aidan roam. Aidan looked back once as if to say, “Are you sure you’re ok with this because I’m not afraid to hightail it outta here?” Garreth stayed close for safety, of course, but always out of Aidan’s line of...

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Mobility Journey

This is a long one but I’m asking three things of my wonderful readers: Take the time to watch the video which I believe is a really powerful example of what even a child with significant disabilities can achieve. Bust out your pom poms or didgeridoo or bugle or something and celebrate mobility with me. Share this post with any special education or medical professionals, parents on a similar journey, or anyone who needs some...

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Go.To.Bed!!

My kids have always been perfect little bedtime angels, always going to sleep without a fuss. Sometimes we read stories and or sang songs when they were little, but they didn’t beg for more or cry if they missed them. In fact, my mom likes to tell the story of when she was taking care of Liam as a baby and she tried to rock him and sing him lullabyes. He just pointed to his...

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Wheelchair Update

Shasta of Outrageous Fortune recently wrote this regarding a search for an appropriate wheelchair for her son Malachai: I worry that if I get him a power wheelchair that I’m “caving” or “giving up” on him ever walking, because why would he want to try crawling if he already had something that propelled him around? (Indeed, he already does that with me.) But I worry that if I force him to be in a manual...

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Best.Decision.Ever

To think I almost missed this: my son, out and about enjoying life. Here’s one thing I can be thankful for every single day without hesitation – Aidan’s power wheelchair. It’s given him independence. And to think I almost said no. No, I don’t believe he can drive that. No, it’s too complicated to be a part of our life. No, it’s just not appropriate. No, Aidan’s not smart enough. I’m so glad Aidan proved...

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Why a Wheelchair?

Aidan’s wheelchair is on it’s way from wherever wheelchairs are born, I guess a wheelchair stork. We’re very excited. It was at first denied by insurance but with a little encouragement (not the mob kind, I promise) they began to see things our way. The only tricky part is that everything in their denial is slightly true, or truthy, or based on truth….whatever. They don’t want him to have the power chair because it’s not...

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Decision Wheelchair

We’ve finally made a decision about Aidan’s wheelchair. Aidan tested both a manual and power chair and we gathered lots of info. We listed pros and cons and got all sorts of advice. Then, together at the end of the day, Garreth and I had a heart to heart. These conversations aren’t always easy. There’s the logical side and the emotional side. Garreth put it right out there that he didn’t like to picture his...

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And the Power Chair…

Now don’t be persuaded by his giggle. This is really fun to drive and the manual chair is work. I get that. But would this be functional? I would also like to say that he really is motivated in his manual chair because he keeps on going, even though he’s too focused to giggle, unless I’m chasing him in another chair but I’m not buying another chair just for chasing so that won’t happen. So...