Category: Mobility

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Buying New Wheels

  Aidan got his new wheels last week. His first power chair lasted all five years that it really needed to. Insurance doesn’t like to replace them more often than that. His was being held together by duct tape and had developed a suspicious grinding noise. Aidan’s new chair is similar to his old one but offers seating choices. It reclines, tilts and most importantly raises up to the height of his peers. We absolutely...

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Wheels that changed one life

Karen, Aidan’s PT, share a lot of helpful information about what to think about when making a decision to get a wheelchair. Today you can read my side of the story here ***** My son Aidan drives a wheelchair like a boss. He’s 14 years old with a rare genetic disorder and uses both a power chair and manual chair for independent mobility. But he almost didn’t. Because of me. Because it’s complicated. Because it’s emotional. Because...

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My love-hate relationship with wheelchairs

And here again is Karen, Aidan’s PT, to discuss our decision in getting his power wheelchair. It was complicated but there’s lots of helpful information here. Enjoy and stay tuned for wednesday when I tell my side of the story. ***** I lose sleep over wheelchairs. Truly a love-hate relationship. It’s one of my hardest yet best experiences as a pediatric PT. Leading a child and family through the decision-making process for assistive/adaptive equipment is...

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When Gratitude is Practiced

I started taking yoga this year and I look ridiculous. I chose yoga because, no joke, it was the cheapest excercise class I could find. It was weird and uncomfortable at first and I rolled my eyes at all the breathing we did and the nap we take at the end. And speaking of cheap, do I really need to pay someone to tell me to breathe and nap? Apparently, I do. On the inhale, move. It turns out...

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Both/And Walking

Here’s the story behind this video that I posted on FaceBook yesterday: Aidan got this new piece of equipment on monday and he took to it like a fish to water. Aidan loves to move. He’s had several walkers before but they were cumbersome and he needed a lot of support to use them so they ended up collecting dust. Truth. But Aidan can walk. He’s been able to walk ever since he spent a year on...

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Why I’m Not Writing

Crash Jewelry on the floor Bang Drawers rattled open Boom Books scattered Independent Mobility is exhausting. Laundry, dishes, chaos everywhere. Drawing my circle a little tighter these days. College tours and first days of work for Liam. Driving and destruction for Aidan Lack of schedule, motivation and parenting skills for me. I’m on the couch waiting for summer school to begin.    

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See-Saws and Sand Tables

Making friends is an important part of childhood, but talking about it makes me feel a little off balance, like being on a see-saw and wondering when I’ll hit bottom. Having a child with a disability can be somewhat isolating even when jumping up and down and yelling, “inclusion for all!!” Think about it – where do kids meet up? At play dates arranged by moms at the same stage in life, at music classes...

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My Walking Walker

Reposting today in celebration of Aidan’s Pura Gene sister Audrey, who got her first set of wheels this week. We watch with hope and excitement as she takes on the world in whatever way she chooses. Meet my son Aidan. He’s a Walking Walker who Walks. Yes, he walks with assistance and only short distances but still, he’s a kid who walks. Aidan was born thirteen years ago with an undiagnosed developmental disability and low muscle...

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My Son the Magpie

Magpies, crows, and blackbirds have a bad rep. They steal shiny objects and decorate their nests in the spirit of feng shui, I suppose. Aidan’s wheels are his wings of freedom. He really is a master driver in his manual chair so we just let him set out and go where he wants. Up until he learned to drive, he would either cry, and I mean all the dang time, or he would have to sit...

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Humbled Again

In these short three weeks we reached our fundraising goal for Aidan’s lift because community really does matter, because doing life together really is easier, because people really are generous, because people really do care. So thank-you. In the most practical sense we are very grateful to have the funds to buy the lift that will keep Aidan safe as he comes and goes. Garreth and Liam took over the primary responsibility to get Aidan...