Category: Family Synapse

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The Importance of Cute PJs

Raise your hand if you’ve seen the episode of Modern Family where Claire puts off calling 911 for a few minutes so she can change into her best outfit complete with plunging neckline. That was exactly what happened to me last week if by best outfit you mean PJs and by plunging neckline you mean soft flannels. It’s just how I roll, and oh yeah, I was actually stuck in my PJs. Here’s the scoop…....

0

Unicorns Are Real

If you follow me on FaceBook, which you totally should, you would know that I saw TWO unicorns today. If you define unicorns as beautiful, miraculous creatures that are magical, which Websters most certainly does not, but I do, so there. But let’s back up to my first unicorn sighting several months ago. You will NEVER guess where the unicorn was frolicking. Seriously. I’ll give you a hint…it’s the LAST place you’d think of. Exactly....

2

Aidan Gets Around

I’ve said that Aidan is non-ambulatory and then I talk about what a great walker he is. It’s confusing, I know. Aidan has several ways of getting around and instead of explaining them I thought I’d just show you. (Subscribers click through to blog to view videos). Here’s Aidan walking at home holding my hand. This is a bit like dancing because I have to feel how he is balancing, let him advance his feet...

9

And Then I Talked About Pissing Contests in Church

I went to speak to our Mothers of Preschoolers (MOPS) group at my church a few weeks ago. Here were these sleep deprived, spit up on moms with newborns and energetic tikes wanting to know how to be part of my world. I got to share how sometimes my journey looks just like theirs (we all celebrate our children and get tired and work hard to see them progress) and sometimes it’s very different (Disability...

6

Staring

I won’t tell you to tell your kid to stop staring at my kid. Maybe I should, but I won’t. Aidan is very obviously different than his peers, and kids by nature are curious. We in Disability World can sometimes be quick to think that staring implies negative thoughts which may sound like, “Mommy, what’s wrong with that boy?” Ok, so that’s awkward, but the truth is, something is wrong with Aidan. His brain doesn’t...

2

Seizures Suck – In Case You Forgot

November is Epilepsy Awareness month. I don’t want it to be a competition between diseases and who makes the loudest noise and has the sexiest celebrity advocates and gets the most funding. Let’s cure breast cancer. Really. Now. While we’re at it, let’s cure Epilepsy too. This post should be full of helpful information to make this awareness month useful. But I’m tired and don’t have it in me at the moment. Maybe later. Right...

3

The Issue That Wasn’t

Liam has found his mojo, his thing, his niche. ¬†After years of being a homebody and a bookworm, Liam joined the Cross Country team at his school and has really excelled at running. Though the season has ended, he has his sights set on breaking the school record next year. I’m so stinking proud of him. After the first meet I asked Liam if he wanted to host a team dinner at our house. It’s...

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Day Without My Voice

Drawing inspiration from both Aidan, my non-verbal 12 year old, and Mary, another mom of a daughter who is non-verbal, I decided to spend one day without my voice. I learned so much a few years ago when I spent the afternoon in Aidan’s power chair. Unlike Mary, I didn’t have much of a plan nor was I really familiar with a particular speech app on Aidan’s ipad. The one we originally purchased for him...

3

It’s Just About Getting the Words

“It’s just about getting the words,” my chorus director said. She had 200 deer in the headlights faces looking at her as we were attempting to learn a new piece of music. We were singing in an unfamiliar African language. For the most part we had the tempo and tune. That was actually enough to covey that it was a joyful song. But about what exactly? I think about all of the ways Aidan communicates...

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A Love Song for Insurance

Dear Insurance, Gosh, we’ve had a really complex relationship over the past few years. It’s hard for me to remember each morning if I love you or hate you. After all, you’ve been very patient with me being so finicky and wanting second opinions. Sometimes a girl just can’t make up her mind, right? But you’ve have moments of stunning stupidity as well. Remember when you said not everyone needs to sleep in a modified...