Category: Family Synapse

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Paralympic Sporting Events

The Paralympic Winter Games are much smaller than the Olympics. While the events you watch will be quite familiar, there will be a bit of techno-speak. Let’s break it down. There will be 72 medal events in 5 different sports. Within each sport, athletes are grouped according to “Sports classes.” This classification system takes into account the degree of limitation resulting from specific impairments as it pertains to the each sport. 1. Biathlon Ski and shoot,...

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Paralympic Primer

ON YOUR MARKS….. The Paralympics are starting soon and it’s worth repeating that the Special Olympics provide athletic competition for children and adults with intellectual disabilities and are more focused on the recreational aspect of sports. Aidan will always be my favorite Special Olympian. The Paralympics are primarily for people with physical disabilities. They are built on the competitive notion of elite performance sports. Paralympics are organized alongside of, or parallel to, the Olympics so that whichever country hosts the...

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Presumed Competence – College Style

I believe so strongly in families and medical professionals working together that I do my part to make those connections better. Most recently Aidan and I visited a physical therapy class. They were learning how to administer a motor control test. Scoring a test can be very difficult. They have to take in to account how much the client is able to do alone or what kind of assistance he needs. Without a participant who...

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It’s Not Over

We all loved the Olympics. Now we start the four year count down to the next winter Olympics in South Korea, or a two year countdown to the summer Olympics in Rio. But let’s not say Dosvidanya to Sochi just yet. It’s the twelve day countdown to the Paralympics. I’m so excited to watch the Games and I have background information to share with you. What specific questions would you like me to address? I...

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Your Baby is a Baby, Not a Number

Budgets should be about numbers, not personal trauma. They should be created with wisdom and efficiency, not shaming tactics. So Tim Armstrong, CEO of AOL, really blew it when he specifically blamed the birth of two employees’ babies for company benefits cuts.  As in, sorry your co-worker’s kid is so expensive, you just lost a little 401K money. In my opinion his comments were morally reprehensible, but fortunately, the mother of one of these babies...

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Snow Day!!

Subscribers need to click through to the blog because these are videos you don’t want to miss. It snowed all day yesterday here in Maine. The boys had no school and even Garreth’s work was cancelled. We fought off cabin fever by going outside in the freezing cold, and by we I mean Aidan and Garreth. I was perfectly happy inside by the pellet stove with my PJs on all day. So clearly we believe...

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Olympic Fever

I know we’re all enjoying the Olympics right now and the Paralympic Games are starting on March 7 in Sochi. The 2012 Paralympics in London generated much enthusiasm for this event. I’ve been reading and tweeting and writing to get us all ready. My friend Margaret was a volunteer at the London Olympics and was able to attend some events. I asked her to share her thoughts. First, can you tell us what events at both...

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Say it Again

It’s my most favorite time of the year. Sure Christmas is over but now Aidan and I get to go speak to the pediatric nursing students at Yale. I believe so strongly in parents and professionals working together that I will continue to take every opportunity to help them help us. I’ll definitely tell them how important presumed competence is to me. And since they’re nurses, I’ll tell them that I’m convinced nurses saved Aidan’s life...

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A Year in Review

As much as 2012 was the year I was ready to see gone, I’m still pinching myself and wondering if 2013 really happened. My community built an accessible addition onto our house where Aidan can wheel around safely and freely. Besides being amazed at the time, energy, effort, and money that people so generously gave, I’m still savoring every story made along the way. Aidan had major orthopedic surgery and we survived the intense recovery...

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A Picture’s Worth

Reposting from last Christmas because it’s so darn cute and I still have mad parenting skills… It’s a scene that happened all across the world on monday night: A church service of lessons and carols to set the stage for Christmas. After an hour of hearing the familiar Bible story of the birth of Christ and soaking in words of the Peace and Joy of the season, we get to light our candles and sing...