Category: Family Synapse

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My Baby’s Gone off to College

Ok, so I’m not an empty-nester yet. The fourth graders, this year that’s Aidan, take a field trip to our local university to put college on their minds. Aim high, this can be your future, college is fun before it’s stressful… that kind of thing. Of course, this isn’t Aidan’s first time there. He was a professor before he turned three. Well, technically I suppose his physical therapist was the professor, but she knew where...

1

Thankful Thursday

I’m thankful for Liam’s sense of humor. Last week he asked me if I would make him a PBJ sandwich. I lovingly replied, “Dude, make it yourself.” He then tried to tell me how much work he’s done so he really needs me to cut him some slack. Really? You wanna talk about work, kid? When that was an epic fail, Liam said, “Your poor disabled son wants you to make his brother a sandwich.”...

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First Parking Mishap

Driving around in our fabulous accessible van, I’m learning where the best parking spaces are.  Big shout out to Target for having the most available accessible spaces.  Garreth went out on a man-date the other night and we wives decided to take the kids out for pizza.  Now, I’m generally one to hunker down at home and not deal with the hassle of taking kids out.  However, I figured, if she could get out with...

5

Couldn’t Have Said it Better Myself…

but I’ll try.  This mom makes two great points about parenting. First, it’s not a democracy.  While we seek and appreciate wise counsel, we as parents get to make the final decision.  When parenting a child with a disability, we hear from a whole slew of professionals.  Then we get to say things like, “No thank-you.  Aidan won’t be wearing those swim bands to discourage him from taking off his glasses because we’re actually encouraging...

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Extreme Home Makeover

Wanted to make sure everyone saw yesterday’s comment from Amanda Jobin.  She is a dear friend who is part of my tribe and has been a wonderful champion for our family.  Check it out and feel free to join us in another wonderful community effort. EXTREME BOWIE HOME MAKEOVER The application is almost complete, but we would love to include letters that support their nomination for ABC’s Extreme Makeover Home Edition. Please consider writing one!...

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Thankful Thursday

I’m thankful for play time with Aidan.  Because all Aidan really wants is attention, I can usually get away with just snuggling him.  Yesterday I put forth the effort to really play with him.  We busted out the ipad and he made some choices.  He mostly wanted to play ball.  If he threw it down he’d have to make a choice again.  He pretty consistently chose ball, which I knew he wanted because he was...

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Medical Update

So I don’t think I’ve kept my readers updated about what’s going on in Aidan’s medical world. There are several reasons for that, not the least of which is that I don’t really know and it’s stressful to think about. You know that we went to the hospital in January for testing and that Aidan has been having strange events primarily while eating. Here’s the skinny on what’s happened since. They’reseizuresnothey’renotwhoreallycareswhattheyare. Puthimondrugstakehimoffdrugsdothefunkychickendance. Let’sstickwithhismedicalteamlet’sgetsecondopinionslet’sgoalternative. So there...

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Apples and not Apples

I just wanted one thing to be easy. I’ve been eagerly waiting for our trial ipad with Proloquo2go on it. I was ready to pledge my undying love once again to a Mac product. I want Aidan to have a voice like all those other kids on youtube. We’ve been using a Dynovox, which has been somewhat confusing but has great potential. I thought I’d be comparing apples to apples, but these devices are so...

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Dancing with Max

Today I had the privilege of hearing Emily Colson speak at a conference. She wrote this book about her experience of raising her son who has autism. I love how honest her stories are, speaking of the struggles as well as the joys in her life. At the end of her rope, wondering if she could be the mom she needed to be, she decided to live life boldly. Emily spoke of waking up each...

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Thankful Thursday

It’s 10 years ago that we entered our new normal. This photo was taken when the ambulance came to transfer Aidan to a larger hospital. It was definitely one of the scariest phases of my life, with lots of tears and anxiety. However, with some distance, I know I have much to be grateful for. I’m thankful for the nurse who thought to leave me with a photo of my son to hold until I...