Category: Family Synapse

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Happy Mother’s Day

By Lori Borgman Expectant mothers waiting for a newborn’s arrival say they don’t care what sex the baby is. They just want to have ten fingers and ten toes. Mothers lie. Every mother wants so much more. She wants a perfectly healthy baby with a round head, rosebud lips, button nose, beautiful eyes and satin skin. She wants a baby so gorgeous that people will pity the Gerber baby for being flat-out ugly. She wants...

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Tough Mudder

That’s my sister Becca on the left. She’s partaking in the Tough Mudder this coming Saturday in Vermont. It’s basically a 10 mile run up a mountain with 19 crazy obstacles to do on the way. I believe it’s modeled after military training. They’re raising money for the Wounded Warrior Project. I have no idea who those warriors are, but leave it to my sister to find a man in uniform. Here’s why this post...

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The R Word

Words matter.  You know that, so use them wisely. In honor of Aidan’s upcoming Special Olympics, please take a moment to watch the clip below.  For people who somehow confuse this as a freedom of speech issue, here’s the best thing Tim Shriver says, “You’re allowed to be humiliating, degrading, and hurtful.  I’m allowed to petition you to at least recognize what you say and be aware of the option you have to stop.” The...

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Countdown to the Special Olympics

Five more days until the Special Olympics for Aidan. He is donning his Team Powerthirst shirt and training hard. Every year he’s surprised me with something new and fabulous. Last year, it was not stopping at the finish line. That boy just wanted to keep on walking. I’m excited to see what he has in store for this year. And, as a special treat, his Nana and Granda from England will be here to watch....

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Who Wore Blue?

We wore blue and so did: Awesome Yale nurses Columbus House staff who work with the homeless Hole in the Wall which serves children with serious illnesses And many many others. Thank-you for your support everyone. If you have a story to share, please do. Two bits of housekeeping. First, please vote in the little survey on the right so we can think about Blue Day next year. Every vote counts, for real this time....

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Thankful Thursday

Today I’m thankful that people are rallying to wear blue tomorrow for the first ever officially unofficial Wear Blue for Undiagnosed Children Day. The Purple Day website explains that the color purple represents isolation that many people with disabilities experience. The idea is to send the message that they are not alone. I instantly feel supported and known when talking to other parents who have children with disabilities. There’s such comfort and strength in that....

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Elevator Speech

When people ask me for Aidan’s diagnosis, I say he has development delays and hypotonia (low muscle tone.)  Those are words that get you nowhere.  When he turned 6, he lost some services because that diagnosis was no longer valid.  Happy 6th Birthday, poof, your disability is gone.  No wait, the disability is still there but your services aren’t.  In school he is labeled as multi-handicapped.  That only works for school.  Many agencies have different...

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Jealousy

Did you know that March 26 was Purple Day to raise awareness for people, like these beautiful children, who have Epilepsy?  March also included a Cerebral Palsy Awareness Day as well.  You must know by now that April is Autism Awareness month and buildings across America lit their lights blue. These are great opportunities to bring awareness to these important issues. I share some of their struggles and feel like part of their tribe. But...

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Aidan’s Awesome ipad

Big shout out thank-you to Team Aidan contributors who made it possible for him to get an ipad. We’re so excited to use this technology with him. So far he’s had a great time with the farting fishing app. He’s also found a neon colored drawing app and, of course, his drums. His intro to the ipad was a FaceTime call to Pop. He visually attended very well but couldn’t quite figure out what to...

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My Baby’s Gone off to College

Ok, so I’m not an empty-nester yet. The fourth graders, this year that’s Aidan, take a field trip to our local university to put college on their minds. Aim high, this can be your future, college is fun before it’s stressful… that kind of thing. Of course, this isn’t Aidan’s first time there. He was a professor before he turned three. Well, technically I suppose his physical therapist was the professor, but she knew where...