Category: Family Synapse

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In the Beginning – Part Four

Update Week 4 from Becca Aidan was supposed to have surgery today to insert a G-tube and tie up a bit of the top of his stomach to decrease the reflux. This didn’t happen. Last night the docs took out the NG tube and hooked him up to an IV in preparation for the surgery. His O2 saturation levels dropped 30 times (this means his breathing wasn’t stable enough but we had become so used...

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In the Beginning – Part Three

Update Week 3 from my sister Becca We finally have some good news! Aidan may have a transiently elevated level of an enzyme (tyrosenemia) which is treatable with Vitamin C and could be reversible. He was started on Vitamin C on Monday and they are going to take a level on Friday.(This did end up bringing his levels to normal but had nothing to do with the big picture). They don’t know if it is...

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In the Beginning-Part Two

Update Week 2 Heather and Garreth and Baby Aidan are moving to the regular Pediatrics floor for his care. This is good because it “de-intensifies” his care and Heather and Garreth’s experience as well. There’s a lot more room up there and one of them can sleep in his room. They’re still working hard on a diagnosis at this point. YaYa Juliette the doctor Did you know that once a baby leaves the NICU they...

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In the Beginning – Part One

Aidan seemed fine at first. There was no obvious crisis for him. I’m convinced that the nurses saved Aidan’s life. They knew things weren’t right, even though they couldn’t figure out what exactly was wrong. They took Aidan into their office to observe him, though they told me it was so I could sleep. The time came to wake me up and tell me what was going on. We really had no medical information. Here...

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In the Beginning – Prologue

I’ve been inspired by a friend’s blog to look back….waaaay back. I want to tell the story of Aidan’s first few months of life with the wisdom of hindsight.* I’ll share some excerpts of emails between family and friends and try to recall some of the back story details. Please excuse this disruption in Thankful Thursday posts but friend us on Facebook (Aidan TeamAidan Bowie) and I’ll still have Thankful Thursdays there. You’ll read about...

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Thankful Thursday

This is a special shout out to the Yale nurses who asked, “How do you think Liam is doing as a sibling of a child with a disability?” We are really mindful are trying to carve out time with Liam. The truth is, Aidan requires a lot of care and there’s no way to hide that. However, he’s part of the family, and to Liam, this is what family looks like. Liam and I are...

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Don’t Let the Door Hit You in the Butt 2011

I’m sooo ready to be done with 2011. It was dominated by seizures and my best friend moving far far away and other really yucky relationship stuff. Alas, I am a glass half full person so I would be remiss not to mention that my marriage is fabulous and my kids are pretty darn great as well. So before 2012 brings on its amazingness (although I would happily settle for an average, uneventful year), let’s...

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Thankful Thursday – Say No to Drugs Edition

The first year of Aidan’s life was incredibly stressful. I desperately wanted answers, was scared that he would never get better, and was certain that I wasn’t the right mom for the job. After a while, I hit my groove. Aidan was slowly but surely getting better/stronger/healthier. Eventually, I gave up the panicked search for a diagnosis, though it’s something that’s still in the back of my mind. It took longer to believe that I...

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MY Breakfast

Don’t cry him a river.  Aidan had already eaten his breakfast (eggs, bleh) but clearly wanted mine (french toast, yum!) Bouns points for his communication skills, tracking skills, and balancing skills. And super bonus points to Daddy for making us breakfast in bed. Now if I could just eat in peace….MY Breakfast Sorry for the technical difficulty. You have to click on the link because it’s too early in the morning for me to figure...

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Thankful Thursday

Wow – this post was just made easy for me.  I’m so thankful for all of my boys’ teachers.  Here is an email I received from one of Liam’s teachers today: Last night I was sitting at home, relaxing, and thinking about nothing other than SCHOOL and my students. With the holiday season upon us, I try to reflect on things in my life that I am thankful for. One thing I was thankful for...