Category: Family Synapse

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Aidan goes to Bowdoin

Let’s talk about the topic I’ve specifically been avoiding. Aidan, Liam, and the big departure. I know I will be both grieving AND excited when Liam goes to Bowdoin. This school is the right fit for him and he has so many grand adventures ahead. And yet, he’s a mini me and is the joy and laughter that fills this house. I’ll feel all the feelings and I’m good with that. But what about Aidan?...

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Red Carpet Week

This is it. The week leading up to Liam’s graduation. Full of celebration and anticipation. In truth, so far, it hasn’t been quite as hard as I expected. I know, I know. There’s no saying what the actual graduation ceremony will hold for me, but I thought the weeping and wailing and rocking in a corner would have started by now and it hasn’t. The school calls it Red Carpet Week as there are little...

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As You Become

For my Bowdoin bound boy in honor of Bowdoin One Day. ***** I hope you stay curious that your brainiac wheels keep turning, wondering, asking questions about the world around you and the topics before you that you spend hours with your nose in a book stretching your mind, and hours in conversation stretching it more. I hope you remember when you tank a test that your work ethic is more important than the letter on...

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Being Broken

A few months ago I threw my back out. It was the kind of injury that left me screaming in pain, crying from frustration, moaning in agony, and constantly squirming looking for relief. I have never known pain like this. Every step was fire shooting through my leg. I left the couch only to use the bathroom and go to bed. Over two weeks, I was able to walk with less pain, but was still...

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Hope is the fuel we run on

  Non-verbal. Non-ambulatory. Seizure disorder. Genetic mutation. Spinal fusion. All phrases used to describe my son. All true. All words I want to throw out like yesterday’s trash. My son Aidan has a rare genetic disorder and he’s pretty incredible. I know, I’m his mom and believing in him is my job…..   Read the rest over at HealthiVibe

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Growing Up

This picture was taken five minutes ago: These brothers are telling a lifetime worth of secrets. What it will be like when one walks into the room and the other always laughs, or how they’ll star in daddy’s stories as Tonto and Squanto, and how to play captain of the ship covering your brother in empty cardboard boxes. These are the stories siblings tell. Stories of family vacations, playing ball, baking sweets. Pieces of everday life. I’m...

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Yes We Can!

Reposting for Paralympics in Rio – Also check out Paralympics.org to watch the Games! As we tune in to the Paralympics, it’s worth pondering how we speak about, think about, and perceive the athletes and people with disabilities in general. If you have spent anytime reading online, you’ll know that some people care a whole lot about what words are used to discuss disability while others care less about the words and more about the tone (that...

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Three Important Things

I played Christmas songs on the piano today. Yes, it’s April, but Christmas music is my go-to for relaxing music. That and Clementi Sonatinas. I teach piano but I haven’t sat down to play for pure enjoyment in a long time. A friend emailed me last week and listed 3 things she was doing for herself. Then she asked what I was doing for me. Now before we get all excited about how wise and...

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Dear IRS

Dear IRS, I just filed my taxes. I did my very best. It was a lengthy and confusing process so I’d like to give you some feedback for your non-mathy people, the ones who play fast and loose with the letter “y” sticking it recklessly onto the end of any word. The ones who preferred the word problems in math class and really wanted to insert themselves and ask, “Where are you going on this...

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Hangers

I recently found myself recalling our home renovation project to a friend. It made me go back to the Bowie House blog and re-read everything. I still can’t quite believe my community came together to make my home accessible for Aidan. Amazing! I have a few posts I’d like to re-share from those days. Enjoy! ***** Nineteen years ago Garreth moved my clothes from one apartment to another while I was taking final exams. We...