Category: Family Synapse

0

Hope is the fuel we run on

  Non-verbal. Non-ambulatory. Seizure disorder. Genetic mutation. Spinal fusion. All phrases used to describe my son. All true. All words I want to throw out like yesterday’s trash. My son Aidan has a rare genetic disorder and he’s pretty incredible. I know, I’m his mom and believing in him is my job…..   Read the rest over at HealthiVibe

1

Growing Up

This picture was taken five minutes ago: These brothers are telling a lifetime worth of secrets. What it will be like when one walks into the room and the other always laughs, or how they’ll star in daddy’s stories as Tonto and Squanto, and how to play captain of the ship covering your brother in empty cardboard boxes. These are the stories siblings tell. Stories of family vacations, playing ball, baking sweets. Pieces of everday life. I’m...

0

Yes We Can!

Reposting for Paralympics in Rio – Also check out Paralympics.org to watch the Games! As we tune in to the Paralympics, it’s worth pondering how we speak about, think about, and perceive the athletes and people with disabilities in general. If you have spent anytime reading online, you’ll know that some people care a whole lot about what words are used to discuss disability while others care less about the words and more about the tone (that...

2

Three Important Things

I played Christmas songs on the piano today. Yes, it’s April, but Christmas music is my go-to for relaxing music. That and Clementi Sonatinas. I teach piano but I haven’t sat down to play for pure enjoyment in a long time. A friend emailed me last week and listed 3 things she was doing for herself. Then she asked what I was doing for me. Now before we get all excited about how wise and...

1

Dear IRS

Dear IRS, I just filed my taxes. I did my very best. It was a lengthy and confusing process so I’d like to give you some feedback for your non-mathy people, the ones who play fast and loose with the letter “y” sticking it recklessly onto the end of any word. The ones who preferred the word problems in math class and really wanted to insert themselves and ask, “Where are you going on this...

0

Hangers

I recently found myself recalling our home renovation project to a friend. It made me go back to the Bowie House blog and re-read everything. I still can’t quite believe my community came together to make my home accessible for Aidan. Amazing! I have a few posts I’d like to re-share from those days. Enjoy! ***** Nineteen years ago Garreth moved my clothes from one apartment to another while I was taking final exams. We...

2

Keepin’ it real cuz it’s all so hard

I haven’t written and I need to write. Also, I’ve been wanting to show you my new Stitch Fix outfits but it turns out taking pictures of me is hard. Me being camera ready is hard. I highly recommend that you go to Mary Evelyn’s blog to see how a real mom works the camera and then feel free to come back here for a giggle. This is me wondering if Liam is really taking...

0

Food for Thought

Food for Thought – November 30, 2015 Notebooks for Peace “We look through the notebook we see all the work that they did and these are notebooks that will never be filled by kids who were killed,” Slate stated. There was Room at the Inn It has come to my attention that ever since Caesar’s pesky census drew thousands to the city of Bethlehem, rumors have been circulating around the region that my inn is...

1

When Gratitude is Practiced

I started taking yoga this year and I look ridiculous. I chose yoga because, no joke, it was the cheapest excercise class I could find. It was weird and uncomfortable at first and I rolled my eyes at all the breathing we did and the nap we take at the end. And speaking of cheap, do I really need to pay someone to tell me to breathe and nap? Apparently, I do. On the inhale, move. It turns out...

0

Food for Thought

Food for Thought – November 16, 2015 University to Employ, House Adutls with Autism New hires with autism could start coming on board by late next year and will be supported by clinical staff and graduate students, officials said. In addition to working on campus, those in the program will participate in life skills training and recreational activities. When she is five she’ll talk, right? But I guess more than that, there is an aspect...